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Hi Vee!

I really don't have a rash.It looks like a mild sunburn on my cheeks that extends from my nose to my cheek bones.But if I go out in the heat,my face will turn bright red and will take about a hour before it goes back to normal.

The 6 of the 11 that I have are :

Arthralgia (Joint pain)
Arthritis
Photosensitivity
Raynauds' Phenomenon
Seizures
Mouth Ulcers

I also have fibromyalgia,which was dx'ed in Dec of 2003.In fact 2 days after I was dx'ed with fibro I had a seizure.

I have to go and see a neuro on Tuesday,because I have been having reacuring headaches that lasts for days,go away for a couple of days,and then come back.I also have been having trouble with my vision and memory problems.

this week,while at work,I even misspelled my own name!

I hope I find out something soon.But I feel that I will have a long wait since my reummy will not diagnose me until something shows up in my blood tests.

Every time I go there with a new symptom or something gets worse,he always orders blood tests.They always come back normal.

Today I am going to my reummy's office to get a copy of the latest blood tests,so I can see for myself what my blood tests show.

Thank you so much!.... :wave:

Rhonda
Hi toughgirl...

[I]re: I really don't have a rash.It looks like a mild sunburn on my cheeks that extends from my nose to my cheek bones.But if I go out in the heat,my face will turn bright red and will take about a hour before it goes back to normal.[/I]

I to have never had a "rash" - just a blush ranging from pink to deeper red. BUT! in numerous articles on websites that I've researched that too is considered the malar (butterfly) "rash"... AND the autoimmune disease specialist I saw Thursday noticed this blush I have (darker than usual on Thursday) and asked me if I usually have it. I told him it comes & goes (over years) and usually gets worse in sun or heat but it has never been a real "rash". But he was typing symptoms into my chart on the computer and as he was typing this, he said out loud -- "Positve for Malar Blush".

I posted a reply recently about symptoms and their percentages common in lupus and the malar blush (from that article excerpt) said only 42% have it.

That leaves a whole lot of us who may never........

:)





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