It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board


Lupus Board Index
Board Index > Lupus | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Cellcept
Jul 11, 2004
Have anyone tried cellcept ? It's expensive and my dr. recommended it. I wonder what's ypur opinion
Re: Cellcept
Jul 11, 2004
Hi... what is cellcept? a medicine..?
Re: Cellcept
Jul 11, 2004
cellcept is supposed to be the immunesuppressent with the smallest amount of side effects.

I heard a lot of good things about it from some other people on another board. If you have organ involvement, this is the drug of choice!!

Good luck!
Love,
Ali
Re: Cellcept
Jul 11, 2004
Hi all,

Cellcept and Gengraf are immuno suppressant drugs. My sister takes both in small doses every day so that her body doesn't reject her transplanted heart. These are heavy duty drugs but these two have the least reported side effects. They are often also used in combination with things like prednizone to control inflamations.

May God Bless You and All Those You Love.
Patience 50 :wave:
Re: Cellcept
Jul 11, 2004
Thanks so much for your response. So far it's my kidney turing bad, but not bad enought for dialysis. My dr want me to take 500 mg for a week and 3 pills/day later. It's a new drug. Hope that it'll turn out good
Re: Cellcept
Jul 12, 2004
Hi efriend... :wave:

Many prayers go with you that this new drug for you does the "trick", has little side effects...

hewie :angel:
Re: Cellcept
Jul 12, 2004
Thanks. This a is new drug. I am very leary about it.
Re: Cellcept
Jul 13, 2004
Hi efriend,

If it helps at all, my sister, the heart transplant, has not had any side effects from any of the drugs since they took her off prednizone. She is super healthy, lots of energy, no rejections, wife, mother, foster mom, college student with good grades. Am I bragging? She is the same age as our oldest, 34, and she has been through a whole lot but the cellcept is the very least of it.

Good luck and may you have peace of mind with this new treatment and good health.

May God Richly Bless You and All Those You Love.
Patience 50 :wave:
Re: Cellcept
Jul 14, 2004
I thought I would just let you know that cellcept is not a new drug.My son had a liver transplant four years ago and was on it for the first few months post op.So i know that it has been around for at least four years.Just wanted to let you know that it was not new so this may ease your mind at least a little bit.Good luck with this and I hope it works for you.Marcia
Re: Cellcept
Jul 14, 2004
Thanks you so much for everyone's response and reassurance. I feel much better
Re: Cellcept
Jul 15, 2004
Hi--I was diagnosed with lupus in 2001 with kidney involvement. A few months later, I had a kidney biopsy done. My kidneys were severely damaged and it was almost certain that I was just on the edge of needing diaylysis. At that time, my nephrologist said that he had read that Cellcept could be effective in people with lupus w/kidney invovlement. I was put on 1500 mg per day at that time. I'm also on prednisone, methatrexate, plaquenil. Well, I was seeing my neprologist every couple of months. I last saw him in June and he says I'm doing so well that I don't need to see him for a year! I thought that was pretty drastic but great news! No dialysis fo me! Because I do see my primary and rheummy every 2-3 months, he feels comfortable that if something goes wrong, that they one of us will catch it or I can always call him if I need to see him.
So, for me Cellcept has been very effective. I have insurance so mine is covered with a small co-pay. There is a friend of mine who uses one of the Canadaian Pharmacies online to get her prescriptions because she doesn't have any coverage. It is legal and is supposed to be so much cheaper! The name of the company is canada drugs.com (I hope it was o.k. for me to post that!)

So, good luck to you. Let me know if you have any other questions about Cellcept. By the way, I haven't experienced any type of side effects from taking it and I am still taking it.
Re: Cellcept
Jul 16, 2004
Renae
Your have the same experience as me. Mine was also kidney to the point of dialysis.
I am so glad to hear the drug works well for you. I definily will try the drug. [[I] removed [/I] ]
Re: Cellcept
Jul 20, 2004
Following the results of his kidney biopsy (lupus nephritis class IV) my partner opted for cellcept rather than chemo, after we trawled the internet for possible treatments. His nephrologist was a lot more open to this suggestion than we had thought that he would be. We had thought that we would struggle to get cellcept prescribed because of the cost. We are in the UK, so cost does not affect us in the same way.

6 months on and Simon is now taking 1500mg of Cellcept and 7.5mg of pred. He has not had any notable side effects. Last week he went to see his consultant and the proteinurea is almost down to normal levels, his consultant is optimisitc that he is heading into remission :bouncing:. And if that wasn't enough, since being on cellcept, there has also been a massive improvement in his levels of fatigue.

Good Luck and please let us know how you get on.

Maxine
Re: Cellcept
Jul 21, 2004
Just a little story to go along with celcept. My daughter-in-law told me one of her distant cousins has lupus. Hers got so bad she needed a kidney transplant. After the transplant her lupus appeared to go into remission. She thought this was great but didn't understand. She had suffered with this for many years. Her transplant Dr. explained that celcept and gengraf were imune suppressant drugs to keep her imune system from attacking her new kidney. Since Lupus is a disease where the imune system attacks the body and organs, when they knocked out the imune system, they effectly killed the lupus. I still wonder why we aren't all put on small doses of this to help control it. I know the standard answer but I don't buy it.

Good luck, May God Bless You
Patience 50 :wave:
Re: Cellcept
Jul 21, 2004
efriend,
how did the doctor's discover that your kidney was going bad. I am going through the kidney scenario right now and i'm just wondering what led your doctors to the kidney?????? thanks in advance...elegantGI
Re: Cellcept
Jul 21, 2004
Elegantgi
My feet was swollen so big that I couldn't walk. I also couldn't urinated and my blood pressure was up to 200. It happened around X'mas and my Lupus dr was on vacation.
So I have to suffer for a month before she came back. I was in a HMO, so I couldn't go to see another dr. I went to emergency and that dr sent me home. I don't have good feeling about this health care system. It's getting worse and worse over the years. Now My dr prescribed Cellcept and it was not covered by insurance. The reason they gave was the drug was for organ transplant and not for Lupus
Re: Cellcept
Jul 21, 2004
I have had recurring UTIs with kidney involvement and the pericarditis and pluerisey. So when they found the pos. ANA and the Homogeneous/speckled pattern they knew it was SLE. At least that is what she told me.

The story was not about me though. This was a relative of my daughter-in-law. I have no idea how they dxed her. I only know she had lupus that attacked her kidneys to the point she needed a transplant and after she was on the anti rejection drugs for the transplant the Lupus went away.

I hope the meds prevent you from ever having to have such drastic measures taken. Transplants are no fun at all.

Good luck and May God Bless You
Patience 50 :wave:





All times are GMT -7. The time now is 05:15 AM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!