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Re: Lupus or what?
Feb 16, 2005
I have not been diagnosed with lupus although that was what the Rheumatologist thought I had. He did all the normal blood tests that they do for lupus and all were negative for it. He did put me on Methotrexate though......even before he got the blood test back. I had never been sick and didn't have a clue what Methotrexate was. I had been diagnosed by my hematologist with autoimmune hemolytic anemia and sent to the Rheum. I was on Methotrexate for 9 weeks and probably at about 6 weeks I started to experience this overwhelming fatigue. I already had fatigue with the anemia but this was much worse. I didn't even feel like holding my head up. I truly thought if I continued to take it I would die. I finally got to come off of it. But then unfortunately my blood counts dropped and I had to go to a higher dose of prednisone and back to the Rheum. who then put me on Imuran. Which is in the same family as Methotrexate but hasn't been as hard on me. I've now been on the Imuran for about 12 weeks. My blood counts are up and even though I believe it too is making me tired it's not as bad. I have read that a lot of people have great success with Methotrexate and it probably wouldn't hurt to try it. That has to be your decision. Anyway that's what happened with me. By the way.......I'm curious......in your posts you said that you had itching. I didn't know that was a symptom with lupus. I have not been diagnosed and all the blood tests for it have come back negative but here are my symptoms (even before I was on any medication) extreme fatigue, anemia, sores that will not go away in my nose, swollen glands in my neck, hair loss, pain in almost all my joints, low grade fever off and on, dry eyes, dry mouth, itching. Does any of this sound familiar to lupus symptoms? What were your symptoms when you were diagnosed? also have a high sed rate

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