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I have been diagnosed with SLE for a year now, but lately I have been thinking about strange symptoms I had for years before that I wonder about...

Has anyone experienced a loud whine or roaring sound in the ears and then passed out? I know there are many reasons why a person might pass out or faint that have nothing to do with lupus. But I know you all know what I mean when I say all bodily functions (and malfunctions) become suspect when you have this disease. Once, I got up and walked across the room, answered the phone and actually began a conversation, then heard this roaring sound in my ears and the next thing I knew, I woke up on the floor, and the phone was dangling by its cord on the wall. The sound in your ears is kind of like the sound the tv makes when the channel has gone off the air late at night or sometimes like when they are doing one of those tests for the emergency system. I know this is crazy, but the sound sometimes seems to randomly switch from one side of my head to the other, like a set of speakers would do if you turned the "balance" knob, almost exactly like that. Although I have had these sound effects and felt woozy many, many times, I have only actually passed out that one time. All the doctor could say was that I probably arose to answer the phone too quickly, which caused a sudden drop in my blood pressure and a loss of consciousness. I know this really does happen, but when lupus is in the picture, one suspects other reasons....

Nosebleeds. About three years ago, I started having frequent nosebleeds, when I had never had nosebleeds in my life before that. Doctor said it was just the membranes in my nose were dried out and therefore easily cracked open and bled whenever I touched my nose for any reason. Something about dry air and needing more humidity. So how come I had lived over thirty years without this happening before, huh? I am sure the membranes actually were dried out, but WHY? I THINK that this was the beginning of signs of Sjogren's (excuse spelling) and all the dry mucous membranes that it causes. If the mucous membranes of the eyes, mouth, and vagina are affected, surely those in the nose fall under the same umbrella? After a few months, the nosebleeds stopped as suddenly as they began.

Has anyone experienced the feeling that you have a lump in your throat that won't go away? Like there is something lodged in your throat that you can't cough up and it won't go down? Not enough to cause choking, but it's there. This was a few years back. I went to the doctor and she looked down my throat and said that the tissues that line my throat were swollen and inflammed, which made them puff out and feel like something was stuck in my throat all the time. After this wouldn't go away, she prescribed me a steriod spray (!) that made the inflammation go away and allowed the swelling to go down. Makes me think of the steriod inhalers given to people with asthma...

Lockjaw. Also about three years ago, my jaw began to lock up on me at random times. For awhile before it actually locked for the first time, I had noticed that my jaw seemed to catch for a second as if it were about to lock, but then the catch would slip out. Usually, I would be eating or talking when it locked open without warning. It would remain locked for 30 minutes to an hour, and then just release. It happened only once while I was at work, and I quietly sat at my workstation with my back turned to everyone until it released, hoping no one asked me anything so I would have to turn around. This went on for a couple of months, then mysteriously stopped and has never happened again. I went to the emergency room once during this time, but the doctors couldn't find any obvious reasons why my jaw would be locking. They asked if I ground my teeth at night, which would cause TMJ problems that might make my jaw lock, but I have never had any sign that I grind my teeth. There is one thing.... sometimes when I take the first bite of food and start to chew, I have some sort of jolting pain that runs along my jawline. Not a pain in my teeth like an ache from something cold or a toothache, but much lower, in the jaw or the jaw muscles, like a spasm or something. I have to stop chewing for maybe ten seconds until it passes and then it seems okay.

I was just thinking that maybe someone else can shed some light on this stuff. It seemed like this lupus just dropped down out of the sky without warning last year, but as I think of all the minor symptoms I have had, it may not have been without warning after all.





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