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hey, just posting this thread to see if anyone here knows if this dizzy, off balance, lightheaded feeling is more common with MS or Lupus? anybody know? any information would be greatly appreciated. thanks. oh, and also keep in mind dizzyness/lightheadedness/off balance as a first symptom. because i believe vertigo as first symptom in MS is rare.

thanks
scott
Dear Scott, I don't know if vertigo tends to appear more in lupus than in MS... [sorry]

I had vertigo & claustrophobia many years before I got the more recognizable & obvious lupus-things like rashes, joint pain & swelling, neuro-like tingling, etc. It came as a total shock, as I'd been a good traveller as far back as early childhood. And I'd never been prone to irrational fear over heights, flying, glass-enclosed elevators, etc.

FYI, one of the "sticky posts", the one with Dr. Hughes's "alternative criteria", describes this sort of thing pretty well.

For what this is worth... Best wishes to you, from Vee (Dx'ed with the SCLE subset, positive anti-Ro but negative ANA)
Hello there,

Just to say yes I too get lightheaded, but I have never thought it had anything to do with my SLE. I get like this if I have a slightly stiff neck or it can come on with sore muscles in the neck and shoulders the same as caused by fibro. Also when I get a bit agitated or nervous this happens.

As I always say, make sure what is definitely causing it, as thinking it might be lupus or ms in origin might cloud over the real reason for it. Any type of neck pain or even anxiety tends to cause this to happen too. I am only exploring some of the causes here as a way of helping you to come to solution maybe. You must make sure you explore all avenues so that the reason behind it can be looked into properly.

Take care

goldenwings :angel:
[QUOTE=Sco24]hey, just posting this thread to see if anyone here knows if this dizzy, off balance, lightheaded feeling is more common with MS or Lupus? anybody know? any information would be greatly appreciated. thanks. oh, and also keep in mind dizzyness/lightheadedness/off balance as a first symptom. because i believe vertigo as first symptom in MS is rare.

thanks
scott[/QUOTE]
Hi I'm new here and I just noticed your question. I have RRMS! And this "lightheaded, dizzy, off balance" describes me perfectly. I have had lupus for 20 years now and never had I experienced any of these symptoms until I got MS in 2000. I must be a rarity among those with MS because it hit me so hard, one day I was normal (lupus normal anyway) and the next day I was NOT!!! I had the cronic vomiting along with a steady headache and after many misdiagnosis three months later after an MRI they diagnosed me with RRMS. I belong to the MSWorld Message board and so far I have not seen anybody on there whos symptoms, when first diagnosed, were like mine. So if you are having these symptoms maybe you can have further testing. I hope I've helped somewhat, good luck!
[QUOTE=Sco24]hey, just posting this thread to see if anyone here knows if this dizzy, off balance, lightheaded feeling is more common with MS or Lupus? anybody know? any information would be greatly appreciated. thanks. oh, and also keep in mind dizzyness/lightheadedness/off balance as a first symptom. because i believe vertigo as first symptom in MS is rare.

thanks
scott[/QUOTE]

Hi Scott,

I have Meneire's Disease, which is common in autoimmune diseases. I have roaring and/or ringing in my ears most of the time, a fullness feeling in my ears, some hearing loss, eardrums that aren't very flexible, so they say, and vertigo and nausea, which are the two most debilitating parts of it. I have very bad balance. Let me add that vertigo is different from dizzyness and lightheadedness, which I also have. Vertigo is more a sensation that you are spinning in space or that the room is spinning around you. It's hard to tell which end is up.

The dizziness and lightheadedness I get are usually attributable to a potassium deficiency, fever from an oncoming flare, hypoglycemia, or that monthly thing you don't have to worry about, lol.

Neither vertigo, dizziness, nor lightheadness were my first symptoms of my lupus. As is usual, fatigue :yawn:, the rashes, and low-grade fevers were the first real signs.

Just my two cents, :wave:
Susan





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