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I also have alot of coughing ....it started about a month ago. I am also on Plaquenil and Prednisone. About 3 weeks ago I went into a flare and they raised my prednisone...now Im back down to 5mg a day. But I still have a nagging cough. I dont see my rheumy till April....but I cant keep coughing like this....so Im calling tomorrow. Last night I had to take codeine cough syrup....my throat is so raw right now it hurts to swallow. I guess Ill see what he says tomorrow...Ill let you know.

Take care Dlayne
Hello gbm,

I have had SLE for over 30 years. but I have only in the last couple of months started to have really prolonged problems caused by coughing. I don't think it has anything to do with my having lupus though. I also have Sjogren's and have tremendous problems with dry mouth, amongst other things. The dryness has extended down into my throat and my gullet, and I honestly think this might be the cause of my coughing. I use an artificial saliva spray which does help with the dryness of the mouth and so helps with the throat dryness, and this helps with the coughing. Maybe you could ask you doctor about this.

I also have asthma - late onset - which is not allergy related. The thing is if you do use the sprays, they have a tendency to make your throat dry which given how you are at the moment isn't the best thing for you to have happen. The best thing to do is to use a spacer to inhale them, and after using them rinse your mouth out. This will help to lesses the dryness that this can cause as well as get rid of the horrid taste.

I have never noticed in all of the years since diagnosis of SLE and of taking steroids daily since then that I have ever had a cough as I have now, this is why I am convinced that mine is caused by Sjogren's. When I am unwell, I increase my steroids myself and this does not help with the cough in any way.

Obviously this is only my own experience, but I hope it will give you some ideas to work with and that things improve for you soon.

Take care

goldenwings :angel:
Goldenwings; I'm glad to hear that I'm not the only Lupus person that increases and decreases her Prednisone based on feeling well/unwell. I too have a persistant cough and I believe that it is allergy related. If it really begins to irritate me; I generally take some cough syrup and it helps. Also, I've noticed when I need to take pain control; generally Tylenol #3, that also helps to control the cough although I never take the 3's for the cough. Only for controlling Lupus type pain. I also have a lot of chest pain; I think it's sometimes Lupus pleurisy and other times it seems to be chostochondritis. Lupus is strange; I try to just go with the flow!
Dee





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