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Lupus or Not
Mar 19, 2007
I have the following symptoms and have seen a rhuematoloist, but no diagnosis yet:

Joint pain (all joints, fingers, wrists, elbows, shoulders, hips, knees, ankles, lower back and neck) very stiff, then loosen up after I'm up and moving around
Low WBC (have had this for 13 years, but no one has ever thought it was a problem) my immune system seems to work fine, I get sick less than anyone in my house
Protienuria-OFF & ON, always clears up, but have blood in my urine several times which also always clears
Palpitations
Abnominal pain - nausea/heartburn (am taking protonix after Zantac failed, and not Protonix isn't working)
Hashimoto's diagnosed in October (thyroid peroxidase antibodies 379) TSH normal now on synthroid
Sed Rate- normal
ANA - negative now, but has been positive in the past twice (like 10 yrs ago)
RA is negative
all other rheum tests are NORMAL
I have never had oral ulcers the only rash I get is when I take a shower I get a rash around my knees and ankles which goes away in a few minutes, once in a while I will have itchy skin, but nothing to write home about - I am very sensitive with sunburns, I have to tan VERY slowly, or I will itch so bad I want to rip my skin off (so I don't tan or lay in the sun without sunscreen)
Never had hot/red swollen joints

Does anyone have lupus who has never had the oral ulcers or rash?? I know I felt perfectly fine a year and a half ago, and now I am so sick of feeling like this, I could just about scream. I walk 45 minutes a day and still do everything I did before, IT JUST HURTS. I think my rhuemi has lupus in the back of her mind, but since I don't have the oral ulcers, rash or swollen hot joints, and negative ANA doesn't think that's it. She did send me to a hematologist, who pretty much said the same thing I said, "If something really bad was causing the low WBC, I would be dead by now or would have been in the hospital with bad infections".
Thanks and sorry for the long post.
Does this sound familiar to anyone out there?





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