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Hi all
Went to see my Nero today, was hoping to get answer to blood work. The bottom line is my CSF revealed the presence of Oligoclonal bands in both the CSF and the blood suggesting a systemic production. Another letter said that Vasculitis was clearly indicated. After explaining my many symptoms to the Neuro he did a batch of bloods looking for RA, Lupus and so on. Today he said all bloods were fine and cannot find anything wrong, yet he admits and acknowledges I am cleary unwell. He has now refered me to a Rheumy, where he thinks I may get more answers. My question is, is it possible at this stage to have Lupus or some sort of inflammatory disease with negative results. I have been on this tread mill for nearly 6 years and I feel like giving up as I feel like a total fraud now. He ruled out MS, yet I have alot of white spots on the brain, he said its ageing. I have painful wrists, joint pain, extreme fatigue, depression, I get so hot, inflammed eyes, gastro reflux, hives, alot of headaches, shortness of breath at times and so on. Should I call it a day or continue my search? I am now so desperate and just dont know where to turn...I hope someone can help or explain...Thank you......Topsy123
[QUOTE=topsy123;2939453]Hi all
Went to see my Nero today, was hoping to get answer to blood work. The bottom line is my CSF revealed the presence of Oligoclonal bands in both the CSF and the blood suggesting a systemic production. Another letter said that Vasculitis was clearly indicated. After explaining my many symptoms to the Neuro he did a batch of bloods looking for RA, Lupus and so on. Today he said all bloods were fine and cannot find anything wrong, yet he admits and acknowledges I am cleary unwell. He has now refered me to a Rheumy, where he thinks I may get more answers. My question is, is it possible at this stage to have Lupus or some sort of inflammatory disease with negative results. I have been on this tread mill for nearly 6 years and I feel like giving up as I feel like a total fraud now. He ruled out MS, yet I have alot of white spots on the brain, he said its ageing. I have painful wrists, joint pain, extreme fatigue, depression, I get so hot, inflammed eyes, gastro reflux, hives, alot of headaches, shortness of breath at times and so on. Should I call it a day or continue my search? I am now so desperate and just dont know where to turn...I hope someone can help or explain...Thank you......Topsy123[/QUOTE]

Topsy,

You said he ruled out ms, yet your CSF clearly showed Oligoclonal bands, which is indicative of MS. How did he rule out MS?

I just looked it up again. The only thing I can think of is the fact that it is in your blood as well as your CSF is leading them to believe it is not MS.

I would definately not give up. The bands indicate there is definately something going on and you need to keep looking. I started with a neuro and ended up at a rheumi and did finally get some answers.

Erin
Dallas TX





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