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Hi guys- I have a few questions, mainly-

Does everyone with lupus have joint pain? And what kind of joint pain?

You see, I've been sick now for several months. I have several slightly enlarged lymph nodes behind my ear and on my neck. I've been running a low-grade fever for about four months. I've had feelings of constantly having a UTI when I infact do not. My urine has been cloudy/foamy during the duration of me not feeling well (four months). I feel so tired. I have no energy. I used to exercise five to six times a week- I had done that for years. Now it's five times a month, if even that.

I don't feel like myself anymore. I get dizzy spells- I've had dizzy spells on and off since I was 18. When I was 18, I went to a neurologist and went through the whole shabang- MRI's, CT scans, everything. They couldn't find anything that would cause my 'vision flips' (my vision literally "flips" so I feel like I've been moved, when infact I have not moved at all- it lasts a second and goes away) and my doctor chalked it up to low-blood pressure.

I'm now 25. For quite a long period of time, I didn't have any of these problems. I felt great- no vision problems, no dizzy spells. I was very healthy and exercised regularly.

But for the past year I've been getting the dizzy spells again, and now for the past four months I've been sick. I've been to the doctor every week. I've had numerous blood tests, which show everything as being fine. My urine cultures are fine. Everything shows that I should be healthy! And yet, I'm not. I constantly feel lethargic and like I have to go to the bathroom. I feel like I have a slight UTI. I'm not prone to UTI's, so I don't know what could be causing that feeling and why it won't go away. :(

The frustrating thing is that I feel like my pcp is throwing random things to the wall to see what sticks, so to speak. She now wants to send me back to a neurologist, although I don't feel that is the right way to go. I had an ENT examine my lymph nodes (and he said they aren't that enlarged and doesn't want to do a biopsy) and he also recommended I see a rheumatalogist. And yet when I asked my doctor last time about seeing one, she said no since I don't have any joint pain.

I am so frustrated with this. My symptoms (tiredness, slightly enlarged lymph nodes, constantly feeling [U]very[/U] thirsty, low grade fever, bladder/kidney involvement, hair loss, Raynaud's Phenomenon, sensitivity to light, been prone to many many MANY infections my entire life) would all be indicative that we should be looking at auto-immune disorders such as lupus or sjogren's. But since I don't have major joint pain (aside from strange back pain and shoulder pain with no rhyme or reason that won't go away) she doesn't want me to go that direction.

Is my doctor right? Or should I be pushing harder to see a rheumie? Any advice on this would be great- thanks. I just want my life back. :(





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