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I posted this over in the Lupus forum, but thought I should hang out a little here as well...........

I have been a member of this website for nearly 3 years or so. I initially joined while trying to research thyroid/adrenal issues, but a recent blood test has turned up APS. The past 3 years have been pure hell. I've seen 7 different doctors, most of whom haven't really listened to me, one was even trying to pitch LexaPro onto me within the first 10 minutes of my intial consultation. Luckily, I was forwarded information to a new doctor by a Dr. Michael Borkin of Sabre Sciences, who's a reknowned hormone/adrenal specialist. It would appear I'm finally getting somewhere. This new doctor is the kind who likes to dig to rule out other causes instead of just taking a shortcut. My last blood draw for blood panels was 14 vials! Yeesh.....

Having APS makes quite a bit of sense to me when I look back at my life. Prior to three years ago, I was never really good about getting checkups, but I never thought I had a reason to go. Looking back on my childhood, there were some serious redflags that were ignored. I spent much of the ages of 7-14 battling major headaches/migraines and very painful abdominal cramping, to the point where I literally couldn't straighten out and walk. I should note that I was kicked in the head in an organized soccer game when I was 10 and the doctors feared I had a blood clot in my brain. Luckily, it wasn't, but obviously something about the blood had them worried. Other than that, the only significant event in my health is when I had mono while I was in college in 2000........doctors just told me to take antibiotics for the strep throat that came with it and to make sure I got plenty of rest for the next 3 to 4 months. As I do more reading, it would appear that mono is a little more invasive than that and is being linked to all kinds of havoc in the body.

...............Like I said, the past 3 years have been hell.......I've experienced every symptom known to man. They seemed to start one November day when I was in Seattle on a business trip. I developed a fever, aches, swollen lymph nodes, and a bacterial infection in the gumline of my bottom-left wisdom tooth. I swear, it was the sickest I have ever been. At one point, I was so sick, my stool was completely black like charcoal. I tried to tough it out for 4 or 5 days, but finally broke down and checked myself into a local hospital. The doctor did the quickest thing he could do, he prescribed me some Penicillin 500V for the infection and recommended I rest. I flew back home about a week later, all-in-all it took about 2 weeks to feel better.

A month later is when it all spiraled out of control. Suddenly I started feeling bloated and fatigued all the time. I was going back and forth between constipation and diarhrea. My body ached. I had night sweats. One of my big toes felt numb. Major headaches and pressure near eyes (which are very dry). My hair turned straw-like and began falling out. My skin wasn't smooth anymore. My memory and concentration got terrible. I felt completely apathetic to anything and everything (looking back on it I think I lost quite a few friendships because of it. I felt nauseus at times (actually there was a period where I was for 3 straight months). My cholesterol turned high, same with my blood pressure. I put on nearly 30 pounds in a couple of months (strange considering how thin I've been all my life and how quick my metabolism has been). My breathing became very shallow. I had strange sugar cravings. I urinated a lot.........and on and on.....I literally spend everyday trying to figure out just how much energy I have in order to know what I can do........when I'm not at work, most of the time I'm up in my bedroom.

These past 3 years have been absolutely brutal from a stress standpoint. I cannot honestly say that I think my body just went kaput, it couldn't take it all anymore. I had always been somewhat of a "worry-bug" but it had never manifested physically until now. The worst part of all of this, is the fact that really nobody believed me.......not even my own mother who went thru a nasty bout of Fibro/CFS for a whole year back in '03........at one point I have feared for the worst. It's very hard to drag yourself thru the day not knowing what's wrong with you and feeling so terribly.

Right now, my leg muscles ache quite a bit, especially my calves. I have episodes where I'll get really tired and have to take a nap, only to wake up about an hour later with this strange squeezing sensation near my heart and feeling really warm........and again, my mental capacity is not what it used to be. I literally have to proof read everything. I just feel so mentally slow.

I'll stop whining now.........just looking for kind words/advice for this situaiton....





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