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Hiya B, to start may I say something - ggrrrr!! it makes me so mad when anybody - not only doctors - have this attitude and way of going about things !!

Ok so having a positive ANA does not have to mean you have lupus. Approximately 95/98% of patients with SLE will have a positive result, but the majority of people with a positive result do not have SLE. A positive ANA can be found in many conditions, including Sjogren's syndrome, scleroderma, rheumatoid arthritis and mixed connective tissue disease. Many normal healthy people will also have a positive ANA. Therefore a positive result test on it's own does not mean that person has lupus.

A lot of doctors work on the premises that a titre lower than 1:80 is usually considered negative. You say though you results came back positive 3 times but he said you do not have the classic symptoms of Lupus, and he totally dismissed you and asked you what else you wanted him to do? Well for a start get a better bedside manner and be more understanding of a patient's fears and worries! I shouldn't judge him because I don't know him but he seems to be very harsh.

There are a number of features that a doctor would look for to go alongside the ANA result for diagnosing lupus. Some of them include a butterfly rash, arthritis, pleurisy, blood abnormalities, kidney disease, etc. in addition to a positive ANA test before making a diagnosis of SLE. There are more which I would find interesting to know if he even spoke about. Questions should always be asked about your history of medical problems, he should go back as far as your childhood too for him to get a full and up to date catalogue of all that has happened to you.

If he has not done this - and he should have done - then I feel it would be better for you, if you can, to change rheumatologists. You cannot and should not be left in limbo like this. It may be that when you are asked the questions and give the answers it turns out not to be lupus, but until the Q & A session happens you will not know.

Good luck with this. Please get back to me if you think I can help further. Take care.

goldenwings :angel:

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