It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

Lupus Board Index
Board Index > Lupus | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Hi everyone,

I've been under the care of a rheumatologist at a teaching hospital for almost two years. When I came to her my previous doctor (PCP that was a practicing Rheumie) I had the dx of Lupus. At the time I had arthralgia, the sun made me exhausted (almost flu-like) and itchy if out for too many hours, positive ANA, positive Rheumatoid factor, positive Anti-Ro and Anti-La, persistent fatigue, diffuse thinnning of hair, and a rash that came and went on my cheeks and nose (which I think is Roseacea). I have also had ocassional mouth ulcers that lasted 4 or 5 days, where white, flat and did not hurt inside my mouth on either the upper or lower lip area or pallette.

She was not concvinced I had Lupus and has basically left it as a connective tissue disease with no definitive answer yet. I was placed on hydroxychloroquine and had to switch to the name brand when I experienced red, itchy areas, most commonly my feet, hands, arms, legs....

Over the winter I had pneumonia for the first time since I was a child and had pleurisy-like symptoms after that may be related to my fibromyalgia. When in the hospital overnight for the pain I had to stay of the plaquenil for about 48 hours. When I went back on it, the intense itching came back so I went off it. My doctor tried to get me back on again and I am now off it again because of the bouts of extreme itching in various patches of skin on my body.

Next week I will start Methotrexate for the second time, but this time as an injectable. Even with the folic acid, my stomach was not doing so well so we decided that the injectable may be a better option. I'm not sure what else to do for the pain, so we are trying this. I'm on Cymbalta for the fibromyalgia and it has truly helped with the muscle pain. However, the joint arthralgia is not that great. I was on prednisone for 5 months over the winter so even though I'm not dealing with the cold, I am never pain free.

Has anyone tried the injectable methotrexate? Any feedback would be greatly appreciated!

All times are GMT -7. The time now is 08:24 PM.

© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!