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I have my blood results back since today and under the Lupus (SLE) Panel it says: ANA IFA Screen Reflex with Titer Anti-Nuclear AB Positive (Out of range) What does that mean? Is it Lupus, could it be Lupus, could it be something else? I am trying to find out what is wrong with me since 2 and a half years...down below is the original post I posted on this website. I know it is long. You don't have to read it, but please let me know what that result means!?

Hi, to everyone here on the HealthBoard! I am a 37 year old female and very healthy up to two years ago. Numerous Doctors can't figure out what is wrong with me. I received so many diagnoses and prescriptions and the problem is getting worse. I feel like I have reached the end of my rope. Maybe one of you can help. Here is my Story:

I am a waitress . It started, that every once in a while I felt pain in my right shoulder, which would subside after a few weeks. My eyes would get dry and feel like something is irritating them. The first Doctor I went to, blamed it on my job and Allergies. Which, with time, seemed to get more and more. That was about 21/2 years ago. I started getting lightheaded and felt like I have hot flashes, which came and went. My skin was flushing and burning at times, so I stopped taking my favorite skin lotion. Then a few months later I had the H1N1 which completely swiped me off my feet for 4 weeks with High fever.

A whole bunch of ibuprofen later I started getting better and then i started the following symptoms: muscle weekness, chest pain, cough, hot feeling but only light or no fever, runny nose, congested nose and I had a hoarse voice for almost 6 months. It felt like a Sinusitis or a very bad Virus infection. I felt tired and week all the time and most of the time I felt nausea, but I would not vomit. This condition stayed for about 5-6 months. I lost 14 lb due to not much appetite. Different Doctors told me different things from Allergies to Sinusitis to Bronchitis. I took Zitromax, Allegra D, Cephalexin, nasonex, loratadin, doxycycline, and Valium for pain. Not all at the same time, but over some months. Nothing seemed to improve my condition. Then a doctor diagnosed me with Asthma and gave me Advair, Qvar and Levaquin. It never felt like Asthma and it didn't have the wheezing either. Then one morning joints started hurting in my knees and I had this crackeling sensation all over my body. My left arm went numb and tingelt and I had this incruciating chest pain. At the same time my abdominal area was hurting too. Stinging pains on my right side in hip area and stinging pain in ovary area both sides.

Time for the hospital. They checked my Vitals, took my blood, thyroid test, EKG and an MRI for my appendix. Everything was negative! They discharged me with viral illness, bedrest recommended and sent me on my way with Proventil. After another view weeks my cough was getting less and less and all symptoms but the flushing skin, hot flashes and occational chest pain subsided. Then the Doctors told me it might be pre menopause, since I was on birthcontrol for 17 years and stopped taking it 5 years ago. But all that for pre menopause...?? The worst was yet to come. The months went by with me sneezing and feeling good one day and a little sick the other. A cold here a rah there, food allergies came and went and then one month ago I had a weired, abnormal taste in my mouth for 4 days, gum sores, a pimpel invasion on my behind and terrible stomack pains. My joints did the cracking and crackeling again. I was itchy all over my body. My arms were week, tingeling or numb or both. My eyes were burning, dry and on fire. My teeth hurt so bad, then my jaw. I started getting soft stool, then watery diarrea for 3 days. Stinging pain in my left arm, stinging random pains all over my body and then just when I felt a little better, my legs felt heavy and I had this burning pain all over my body. I was in agony. Went to the hospital. Blood test, Vitals, thyroid, Ct Brain scan, everything negative. Diagnose chronic pain and a recommendation for an MRI which my insurance doesn't want to pay for.

Yes, I have a job but the insurance is still terrible. The next morning I couldn't walk my legs were so numb and week, I had tremors and my vision was blurred and almost double. I am far sided anyways and everything just seemed further away. The days went by and my legs felt better and my tremors became shaking and a feeling of weekness in my body. A few itchy spots showed up on my legs, which look like spider bites, but itch way worse than that. My legs are cramping a lot, despite the fact I try to eat more vegetables and fruit and I eat vitamins. I keep having stinging pains in my right side above the hip. Stinging pains between my shoulder blades. My chest hurts badly and stings at times and sometimes looks swollen. I feel dizzy and light headed and tired a lot. No appetite. Sometimes my legs, ankles and knees look swollen. I have a hard time falling asleep and i wake up at night and can't go back to sleep due to uncomfort. I either sweat at night or I feel very cold. My body is achy. My eyes are very dry, itchy and my vision is different than it was 2 years ago.

Sometimes I wake up and my mouth is so dry my tongue is sticking to the back of my throat. A lot of times after I eat I get hot flashes. I lost 17 lb in one Month. There is no diabetes in my family. If anything, Arthritis (grandma), allergies (mother) and my grandpa died of a heart condition in his 50's.

I was a very healthy child, always playing outside without any allergies to anything. I had Chickenpox when I was 19, but got vaccinated again because of USA immigration laws. Every once in a while I see some chickenpox looking pimples on my skin, but they disappear again. Oh, and I have neckpain. My neck is stiff quite a bit and I used to have a dermatofibroma on my shoulder which was removed. I have one on my left leg as well. And 5 years ago they detected two cysts on my ovaries, but told me they are nothing to worry about. I hope I have everything. This is the situation I am in right now and the numerous Doctors so far have no idea.

They almost act like I am crazy or some kind of hypochondriac. The worst thing is the fact of not knowing. My insurance doesn't pay for all the fancy tests and with all the symptoms involved there would be a lot of testing which had to be done. So please, if anybody had any idea or recommendation......I will answer all your additional questions
Vee,
your message was perfectly readable :D The bloodtests were performed by my GP. She also referred me to a Neurologist, who gave me a pet on the back and told me (pretty much exact words): "I am supposed to do a whole bunch of testing with you, but not today, CUTIE. We will do another brain MRI first and we will call you. Don't worry, we'll figure out what is wrong with you, HUN." Well, that was two weeks ago and I have not heard from him eversince then. Surprise!

I have been to my GP to 3 follow up appointments so far. Last time I think she was so fed up with me seeing her every week that she told me to schedule the next follow up in two months and she said she will refer me to a rheumatologist. So they sent me a letter in the mail with an appointment with a (good reputation) Rheumatologist in 4 MONTHS (mid December) Seriously!!!

I am writing a diary, some sort of Illness Diary. How I felt that day, what I ate that day and which Symptoms appeared. Lately I am getting lots of little "sunspots" Everywhere. They start like little pimples, but are itchy and then they turn into little brown lasting spots on my skin. Everytime I feel worse I get more. Also worse when I am in the sun. My Urinary tract is going nuts. I need to go pee, but then the stream is very week and it feels like my bladder doesn't empty completely, almost like something is blocking it. And the most annoying thing is this off and on "chest pain" in the same spot. Left of my Sternum. And of course the "usual" hot flashes, sweating, dizzyness eye irritation, a few itchy spots like chickenpox, "yeast attacks", vision change and NEVER fever.

I have all meds and all Doctor visits in chronological order with all the symptoms I had and which medicine I was prescribed and wheather I had an allergic reaction or not (definately to prednisone and a few others) and with the diagnosis I received. Sometimes I wonder if an arterie Disease could cause all this, because my dad just recently had an operation on his aortic valve and he had blood circulation problems all his life. Something with the intestines would sound likely too. The problem is I have so many symptoms that I can't pinpoint the actual reason for all those. Whatever causes me to feel like this causes all those symptoms around it which appear and subside again. But it always starts with flu-like symptoms. That is why I was diagnosed with a viral illness quite a few times. Bedrest and back to work. Which reminds me I am scheduled to go back to work in 4 days and am not sure how I will pull this off :confused:

I also changed my diet a little and I try to eat healthier (more fruit and vegetables), no red meat, no carbohydrates from bread. No diarrhea for 2 days now and I hope it stays this way. Hugs to you to :wave:
I've been following your thread, and feel for you. I know how frustrated you are. I can't believe how long it is taking to get into a Rheumatologist!
Have you ever considered that you may have a chronic yeast/candida issue? Your antibiotic use along with the yeast infection warrants taking a pro-biotic, found in a health food store. Candida can cause all kinds of symptoms including the gastro symptoms. Candida can be tough to get rid of and a lot of Dr's turn their nose up at it.
I'm certainly not saying this answers all of your symptoms, but maybe a few. It certainly can't hurt to take it. The Pro-biotic replaces the friendly bacteria in your digestive system killed off by the antibiotics and keeps the yeast in check. Candid can cause all kinds of allergy symptoms as well. You may want to check out the board on Candida.
When you do get to see your Rheumatologist ask for a DHEA test. I haven't seen any conversations about it here, but it is commonly low in Lupus and other rheumatologic diseases. DHEA is the "mother" hormone in our body, and back in the 90's extensive research and studies were performed on the effects on SLE, with positive results. I had mine tested and it was just about non-existent. DHEA is easily available in both drug stores and health food stores, but I get mine from a compounding pharmacy to make sure the dosing is accurate. It would be interesting to see what your levels are. One of the symptoms it seems to address is the hot flashes which are absolutely miserable.
Most Dr's will not run the test unless you request it. When I took it initially in 1996 I went into remission. Weather or not that was the direct cause will never be known. Unfortunately it hasn't done the trick for me this time, but without it things may be worse.
DHEA does come with it's own side effects because it is a hormone, but adjusting the dose reverses them. I would only take it if the levels come out low. My Dr. said the recommended dose according to all of the studies was 200 mg which I found way too high for me.
I have been going through so many of the same symptoms you describe. I had to go to a gastroenterologist for the severe stomach and abdominal pain, a Neurologist for the bizarre numbness, light headedness, severe migraines, and weakness. I too get the severe skin burning. It feels like a sunburn but it has no redness. Any contact with the skin is very painful. It moves from area to area. One thing I found that makes it feel better is HOT water. You would think taking a hot shower would hurt it, but it actually interrupts the nerve pain process. Unfortunately it only lasts as long as the bath or shower.
Your symptoms may or may not all be interconnected which makes diagnosing that much more difficult, siince any responsible physician will want to address every system seperately to rule out anything else. I go to so many specialists, and at the end of the day it is always chalked up to yet another symptom of Lupus.
I can hardly wait for you to get some appropriate treatment whatever the diagnosis may be.
I've been following your thread, and feel for you. I know how frustrated you are. I can't believe how long it is taking to get into a Rheumatologist!
Have you ever considered that you may have a chronic yeast/candida issue? Your antibiotic use along with the yeast infection warrants taking a pro-biotic, found in a health food store. Candida can cause all kinds of symptoms including the gastro symptoms. Candida can be tough to get rid of and a lot of Dr's turn their nose up at it.
I'm certainly not saying this answers all of your symptoms, but maybe a few. It certainly can't hurt to take it. The Pro-biotic replaces the friendly bacteria in your digestive system killed off by the antibiotics and keeps the yeast in check. Candid can cause all kinds of allergy symptoms as well. You may want to check out the board on Candida.
When you do get to see your Rheumatologist ask for a DHEA test. I haven't seen any conversations about it here, but it is commonly low in Lupus and other rheumatologic diseases. DHEA is the "mother" hormone in our body, and back in the 90's extensive research and studies were performed on the effects on SLE, with positive results. I had mine tested and it was just about non-existent. DHEA is easily available in both drug stores and health food stores, but I get mine from a compounding pharmacy to make sure the dosing is accurate. It would be interesting to see what your levels are. One of the symptoms it seems to address is the hot flashes which are absolutely miserable.
Most Dr's will not run the test unless you request it. When I took it initially in 1996 I went into remission. Weather or not that was the direct cause will never be known. Unfortunately it hasn't done the trick for me this time, but without it things may be worse.
DHEA does come with it's own side effects because it is a hormone, but adjusting the dose reverses them. I would only take it if the levels come out low. My Dr. said the recommended dose according to all of the studies was 200 mg which I found way too high for me.
I have been going through so many of the same symptoms you describe. I had to go to a gastroenterologist for the severe stomach and abdominal pain, a Neurologist for the bizarre numbness, light headedness, severe migraines, and weakness. I too get the severe skin burning. It feels like a sunburn but it has no redness. Any contact with the skin is very painful. It moves from area to area. One thing I found that makes it feel better is HOT water. You would think taking a hot shower would hurt it, but it actually interrupts the nerve pain process. Unfortunately it only lasts as long as the bath or shower.
Your symptoms may or may not all be interconnected which makes diagnosing that much more difficult, siince any responsible physician will want to address every system seperately to rule out anything else. I go to so many specialists, and at the end of the day it is always chalked up to yet another symptom of Lupus.
I can hardly wait for you to get some appropriate treatment whatever the diagnosis may be.





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