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Thanks, sometimes I wonder about the some of the doctors. If anyone has any recommendations for a Rheumatologist in Metropolitan Phoenix, AZ it would be helpful.

In addition to the stuff going on with my face I get a rash on my chest (basically to my neckline) that comes and goes. It is more bumpy and does not itch. My face looks more of a deep flushing or a sunburn (I avoid sun shouldn't be a burn) and that at least lately it sometimes goes away after I cool off. And I know one time was definitely heat exhaustion. Most of the time I don't even know it's there, but sometime it does itch. I also get a spot above one of my eyebrows that comes and goes it looks more like a liver spot. Sometimes is will start to peel.
I recall my PCP testing my throid years ago because I was so tired and she said it was fine. I could not find anything where anti-ro or anti -la were tested.

1998 Blood Test
Positive ANA with 1:1280 titer and Speck Pattern
Native-DNA Negative
Antigen AB Sm & RNP both Negative
Sjogren's SS-A & SS-B both Negative
RA Factor 20.0
C3 Complement 98
C4 Complement 18.3
SCL-70 Antibody Indeterminate
Anti-Centromere Antibody Negative
BASO 0

2001 Blood Test
Positive with 1:640 titer and Homogeneous Pattetrn
Anti-Sm & Anti-RNP both negative
DNA Ab Negative
Sjogren's SS-A & SS-B both Negative
MCV 93
Protein Total 8.0
Calcium 10.0
Absolute Basophil 0

These are the only two blood tests that I could locate from that doctor and the records are no longer available.

2004 Blood Test
ANA Positive with titer 1:640 and Homogeneous pattern
Basophils 0
Sedimentation Rate 4
Rheumatoid Factor <7
Sjogren's ss-A & SS-B both Negative
Anti Sm & Anti-RNP Negative
DNA Index 7.1 DNA Result Negative
CCP Antibody, IgG Negative

2008 Blood Test
ANA Negative
Urea Nitrogen (BUN) 4
BUN/Creat Ratio 5.4
ALB/GLOB Ratio 2.1
Calcium 9.6
CRP <1.0

2010 Blood Test
ANA positive with 1:640 titer and Homogeneous/Speckled
anti ss-a negative
anti-ss-b negative
dsDNA index <1
dsDNA Result negative
MCV 95
Basophils & Absolute Basophil 0
Sedimentation Rate 4
Protein Total 6.8
Albumin 4.7
Alb/Glob Ratio 2.2
Thyroid T3 28.8
Thyroid T4 Thyroxine 6.3
Thyroid T7 Index 1.8
CRP <1.0


2011 Blood Test
MCV 96
Basophils 0
Sedmimenation Rate 1
Glucose 60
Albumin 4.6
ALT 83
AST 43
CRP <1.0
C3 Complement Compenent 110
C4 Complement Component 16
dsDNA Result Negative Status I

I clearly recall my July 2011 had a positive ANA, but I can't find them.

2012 Blood Test

ANA Negative
Sedimation Rate 2
CRP < 1.0
C3 complement Component 133
C4 Complement Component 21
DsDNA Index 1 dsDNA Result Negative
Lyme B. burgdorferi 18, 23, 28, 30, 39, 41, 45, 58, 66, 93 were all nonreactive
VitD 25-Hydroxy, Total 18.7
You definitely fulfill the criteria for lupus diagnosis. ANAs can vary from lab to lab and vary time to time, but going from 1:640 or 1280 to neg is a little unusual. You do not get serositis, oral ulcers, photosensitivity with fibromyalgia. Some people have both SLE and fibro, but this is not JUST fibro. You need a good Dr who will take you seriously, treat you for lupus appropriately with lupus specific meds, and not dismiss your symptoms as trivial, and not believe your past history! Your Vit D is low, so I would supplement that with at least 2000 u per day. PS It is not unusual for only the ANA to be positive and all the rest of the antibodies neg. Also, a malar rash can be just redness. It does not have to be bumpy or itchy. It helps to take a picture of your face and chest when bright red to show Dr. as these are transient and it may not be present during a visit. Then you have "proof". Too bad we need to go to those lengths!
[QUOTE=ladybud;5024959]You definitely fulfill the criteria for lupus diagnosis. ANAs can vary from lab to lab and vary time to time, but going from 1:640 or 1280 to neg is a little unusual. You do not get serositis, oral ulcers, photosensitivity with fibromyalgia. Some people have both SLE and fibro, but this is not JUST fibro. [/QUOTE]

Does anyone else have these fluctuating ANA's? Positive, negative, positive, then positive again, no now negative. :bouncing:
Any ideas on what this means?





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