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... Thanks for the reply... But have you had any side effects from it? the package insert states it can cause hair loss and acne, is this true? Thanks, Snoopgirl (7 replies)
Could you die?
Jan 20, 2006
... i was actually sad to read your post. i am 32, have been dealt my fair share too. i also at times feel like throwing in the towel, but to read a family members outside view..well, i guess we are being selfish. yes, lupus can kill us. i have the clotting antibodies and have recurrant clots/strokes even on blood thinners. i am taking the mildest form of immune suppression... (3 replies)
Dec 15, 2005
... i managed to skate by on pred and cellcept and even though my stomach was put through the ringer, i am happy to report that kidney function improved as well as better results on the lupus bloods. ... (4 replies)

... Hello, Is anyone taking Cellecpt? My doc wants to start me on it. What are the side effects if any is anyone out there is experiencing. :confused: Thanks, (7 replies)
... i have kidney involvement, but am having great results with cellcept 2000 mg a day. ... (3 replies)
... Plus, there was just a news blurb on Cellcept last week, touting it as the first new drug for kidney lupus in over 30 years. ... (3 replies)
... Hi! They call my rash the "malar" rash too, but it seems so much more severe than that. The last time I was admitted into the hospital (about 9 weeks ago) with a severe flare, I saw 14 different doctors (from all kinds of fields) in 3 days. I go to a learning hospital, so everyone brought one or two students with them. I felt like a science project. Annnyways.... My rash is... (5 replies)
? on steroid taper
Oct 10, 2005
... The way it has always worked for me is the doctor first starts me on another drug,such as imuran or cellcept, and then begins to decrease the prednisone after a month or so. (1 replies)
... you do not need to respond. i already have my answers, but maybe this can help some of the newbies out. i am 31 year old woman. when i was 17 i had thyroid storm. graves disease is what they told me. they also told my that my thyroid antibody level was high. never thought another thing about it once the thyroid was controlled. when i was 19 i got pregnant. it was... (6 replies)
... Hello All. I'm new here, and you can learn a bit about me from my post in the thread that shellymay started. My name is Lucy and I'm 23 years old. I've been in and out of flares for the last year, never able to really get better. Right now I'm on 30mgs of prednisone, 2 plaquenil, and 1200mgs of Cellcept a day (among others). For the last month or so, I've had severe... (2 replies)
... Hello everyone, I am having kind of a wierd problem: when I try to sleep at night I can never get a really "deep" sleep and usually keep waking up every couple of hours during the night. As a result, I wake up in the morning feeling exhausted and have no energy all day. I really cant figure what is causing this or how to cope with it, this started back when my lupus... (1 replies)
... they typically use the immunosuppresants like Cellcept to wean you off steriods and not the other way around. ... (3 replies)
Feet Swelling
Jul 3, 2005
... p..down..up..down..i got too worried about a bleed or a clot, so i dropped out. i dont think it did anything anyway. my lupus is active as ever. i still have the cellcept sitting in med cabinet, but am waiting to get onto a study. they target b cells which is the root of all these antibodies. ... (8 replies)
New to forum
Jun 27, 2005
... Dear Jane, Welcome! I'm not sure what all might be causing your rashes---I'm not a dr., to say the least! I did do a lot of browsing, doctoring, biopsies, etc. before finally being Dx'ed with the SCLE "subset" in 2000. Anyway, might you & your doctor see a correlation to the drugs you now take? e.g., steroids may make a person more prone to infections, both fungal &... (4 replies)
New to forum
Jun 24, 2005
... Just wanted to say a hello to everyone. I am 17 years old and was diagnosed with Lupus in July 2003, almost two years ago. I had treatments of cytoxan, heavy doses of prednisone, and plaquenil. I am off the cytoxan now and only take some prednisone, plaquenil, and cellcept. Everything has been well lately(knock on wood) ...except the past two days my right armpit has been... (4 replies)
... Well... my husband is back in the hospital again. Those that have read my various messages will understand the rapid progression of his debilitation. The neuropsychiatric Lupus is out of control. ( This is Lupus that attacks the brain and/or spinal cord) I don't think they really know exactly what to do. --They are using these meds presently to decrease immune response and... (10 replies)
... Hi I have had two lots of pulses of cyclophosphamide, 2002 and 2003, it really helped me and side effects were not as horrendous as I imagined. If you would like to know details of how I felt just post in reply and I will get back to you. :wave: xxhazel (5 replies)
... Hiya, Yes, I was on cyclophosphomide treatment about 10 years ago. I had very large continuous doses not pulses, so I had lots of sickness. I do have lupus but mine wasn't for this. Others though who have pulses do report that it wasn't too bad (sickness wise) so maybe somebody may answer who has had it for lupus treatment. Hope you are able to find out what it is... (5 replies)
... Anyone ever prescribed any of these? Any experience with them at all? (Yes I know the history of Thalidomide) (5 replies)
... the docter will be able to find something else for me to take because the side effects aren't getting any better.. especially cause i started at 75mg a day. does cellcept help with lupus that has organ involvement though? ... (6 replies)

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