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Pages: 1 2 Showing 1 - 20 of 35 for extreme photosensitivity. (0.005 seconds)

... I have lupus and I have extreme photosensitivity. I have to wear sunglasses even when in the car. I also cannot take any heat either. ... (4 replies)
... I have been diagnosed with Lupus for the past 4 years, but had symptoms for several years before. I have joint pain, hair loss, weight gain, skin rashes, and extreme photosensitivity. I was wondering if anyone has had any successful treatments for the photosensity and skin rashes. ... (4 replies)
... the photosensitivity that is worse in the spring reminded me other something I read. Poylmorphic light eruption. ... (1 replies)

Oct 2, 2004
... would add real weight to the blood findings, as would extreme photosensitivity. But both these are also seen in primary Sjogren's. ... (10 replies)
Tried Plaquenil
Sep 25, 2012
... and one of the more disturbing for me, extreme bizarre allergies. ... (6 replies)
... extreme photosensitivity, poor circulation to fingers and toes, migrane headaches far more extreme than before and fatigue that doesn't seem to stop. I developed a lot of food sensitivities over these last couple of years. ... (17 replies)
... lupus case of photosensitivity this severe? ... (5 replies)
New to Lupus
Apr 23, 2008
... Jessica, I'm so sorry you have the problems that led to these formal Dx'es; but I'm glad for you that you now know what you're dealing with, that your doctor is fine-tuning your treatment plan, and that you'll see him regularly. You state that your rheumie added Sjogren's syndrome to your Dx. Was this because of a positive anti-Ro? I was told it can be positive in... (3 replies)
Blue Fingers
Sep 26, 2006
... Ro antibodies, which iare apt to produce extreme photosensitivity, I was told. ... (8 replies)
... Dee, I never had a positive ANA, but nevertheless I was Dx'ed with an intermediate type of lupus that fits "inside" the broader SLE definition. Thus it's called a "subset" of SLE. It's callled SCLE = subacute cutaneous LE. Within SCLE, maybe as many as 1/3 of people with it have a *negative* ANA. The antibody most associated with SCLE is anti-Ro, which it took a long... (11 replies)
Question for VeeJ
Jun 16, 2004
... Hi, Sarah, Of course you are NOT intruding! This was the most amazing thing for me to find, too: other people with some layman's insight into things that sound somewhat similar to what you are trying to track down. We'd never find each other except for boards like this. Very good thing, yes? Anyway, my rash was Dx'ed as SCLE = subacute cutaneous lupus erythematosus. ... (8 replies)
... Over the past 15 years I have had extreme joint swelling and pain, swollen lymph nodes, psoriasis, and photosensitivity. ... (9 replies)
... ay affect mouth, nose, more rarely eyes and vaginal tissue. Occurs in both cutaneous and systemic lupus. Not considered dangerous. Pain is possible, ranging from extreme discomfort to none. ... (0 replies)
Suspected SLE
Dec 31, 2014
... By far, the hardest aspect of all of this has been the extreme fatigue. ... (3 replies)
... For years I have been complaining of extreme fatigue but always assumed it was from the HepC. My platelet count although in the normal range, has always been at the low end. ... (3 replies)
... Gosh, I've never had someone so excited to see my urine before!!! Hee hee. Now that puts it into perspective. I thought I had like one or two symptoms. Poooo! What exactly would they do for me? I don't think I'm anemic now? What do I know? As for the arthritis, I don't think I have that. I just feel like I can't stop moving sometimes and want to keep stretching. It's like... (9 replies)
... You guys are too sweet!!! I would feel badly if I didn't help you! The Lord has given me the knowledge so I am lucky enough to be able to help you all!! :) Truffles: I think that you do meet at least 4 out of the 11 Criteria, let me explain. I have pasted your symptoms in here so that I can go through them with you. -depressive anxiety-on meds-effexor (heart... (9 replies)
... What in the world is wrong with me? Obviously there's an underlying rheumatoid/autoimmune issue going on, but what is it? I meet 4/11 of the dx criteria, but they are all atypical: "Molar" rash: I get a mild, flat rash on my cheeks, but it looks more like rosacia than the standard "butterfly" rash. It comes/goes within hours. Discoid rash: I get rashes on my neck and... (3 replies)
Oct 21, 2012
... Since this posting I have started Plaquenil twice and stopped it twice. First round I took it for 4 days but started feeling nausea, headaches, extra diarrea, extreme fatigue and felt like I had a bad flu. ... (3 replies)
... It's been a little while since I posted here last. To recap; I'm a 25 year old female. After almost 6 months of tests, repeat tests, and mris, my diagnosis has finally been narrowed down to an "auto-immune process." And further narrowed to lupus or sjorgen's syndrome. I started seeing a rheumy last month in Boston who has narrowed things down to my repeat ANA... (6 replies)

Associated Tags: lupus, photosensitivity, rash, rib pain, sun

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