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Lyme Disease Message Board

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I didn't even consider Lyme until reading online about how my "migratory" symptoms seem to match up. I live in Kansas on a farm and I know I've pulled two ticks off of me within the last month. Neither were truly attached to the skin. People seem to think Lyme is rare and my doctor looked at me crazy when I suggested the possibility. She said she would do the testing if I wanted to. Any thoughts or input???[/QUOTE]

Hi Roxy,

I know it must be difficult to be ailing with a small baby. I really don't know what to say about your symptoms being related to lyme. Regarding your doctor's dismissal of lyme in Kansas; unfortunately, this misconception abounds! Lyme is everywhere and in epidemic proportions!

Did you read the stickies at the top of this board? I wouldn't have this doc do any testing but if you want to be tested your blood should be sent to Igenex Lab in Palo Alto, CA. and should include testing for the co-infections of lyme. But lyme is diagnosed first by clinical symptoms, tests are a secondary consideration. The only type of doc who would be able to give you a more definitive answer as to whether your symptoms are related LD would be an LLMD - a lyme disease specialist. Most do not take insurance and you might not be able to find one in your area. Many people choose to travel. Were MS and Lupus ruled out? Many of us are initially misdiagnosed with MS, Lupus, ALS, insanity, and a host of other things but I think that your symptoms would merit this being determined.

I know it must be frustrating not having a definitive answer but if through your research you still greatly suspect lyme you do need to find a lyme specialist, unless you opt for alternative.

I hope you can find the answers you need soon and can begin the healing process.


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