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Lyme Disease Message Board

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Hi Johnpr. Are you having symptoms? First of all, are you sure your doctor is knowledgeable about Lyme? Why would he prescribe antibiotics that are not approved by the FDA? This would make me very suspicious. Where do you live?

Although a bullseye rash is a definite sign of Lyme Disease, only about 50% of people who have Lyme ever get a rash. Often, people are bitten by ticks without them knowing it because they are very small and inject a numbing agent so you cannot feel them on you. Even if the last time you were bitten was 15 years ago, it is still possible you have Lyme. It can lie dormant for a long period of time.

No Lyme test is completely reliable. Even the CDC (who is behind the times regarding Lyme Disease) states that a negative test does not rule out Lyme. There is an over reliance on tests when it is supposed to be a clinical diagnosis.

How long have you stayed on each antibiotic? It can take quite some time to tell if an antibiotic is working. Have you been tested for the co-infections that ticks can transmit--Babesiosis, Ehrlicihiosis HME & HGE, and Bartonella? Many people who have Lyme are co-infected and it will affect treatment choice and progress. Many doctors believe the co-infections need to be treated before Lyme treatment is effective.

The IgM Western Blot tests for a more recent infection and the IgG tests for a longer-standing infection. It is rare to have the number of bands required by the CDC for the test to be positive. Some bands are specific for Lyme. Here are the meanings of the bands you have:

~~Band 34 is specific for Bb (Lyme bacteria)
~~Band 41 is usually the first to show after a Bb infection
~~Band 58 is unknown but may be a heat-shock Bb protein
~~Band 66 is cross-reactive for all Borrelia, common in all bacteria

Do you know which lab did your test? Some labs are better than others.

I am interested in your responses regarding the number of antibiotics you have taken and for how long, and whether or not you have been tested for the co-infections. From what I understand of band results, I think you have Lyme. I would recommend getting another opinion, especially if this doctor is considering giving you unapproved medications.

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