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Lyme Disease Message Board


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Hi Everyone, I'v posted here before awhile back I thought I had lymes disease. It's been 9 months since all my symptoms started back then I was talking to ticker about my symptoms, remeber me ticker Kyle from Minnesota?
Well anyway it's been a hell of a road for me. Back when this all started it was may and the symptoms consisted of this, dizzieness,weekness,severe tremors at night and all day, it always seem to get worse in the heat,brain fog,super light sensitive expecially at night to head lights on vehichles they seemed to be(streaking) like looking at the sun. Now most recenlty which would be about 10 months after this started I have joint pain mostly in my fingers, also muscle spasms all over, oh and severe back and neck pain all day long. So i took my self to the hospital and i was admitted and they ran some test one being a lumbar puncture and they found 1 protein cell and they thought i had menangitis which eventually came back negative. So the next day they did an mri and seen 4 lesions on my brain that they called unspecific. So i was sent to a neurologist you did a bunch of test which were, emg, ver, bloodwork, 2 hour mri, and they all came back negative. They were looking for MS so the neuro gave me inderall for the tremors and told me to come back in a year, real nice ha. So a month went by and I was getting worse so i went back to the neuro and demanded more test. They gave me referal to the invectious disease for a test for lymes disease and he was the same doctor who seen me in the hospital when he walked in the room he told me before he even sat down or did any test he goes if your looking for a lymes dignoses your crazy because you dont have it, I was just about ready to walk out of the room. Well at about this time i was ready to give up i thought i was at a dead end and this was how i was gonna feel the rest of my life. So here i am 10 months later still feeling this way and I cant get a doctor to take me serious. I was going to schol to be a cop and since this has startred of giving up on my future because i just cant focus anymore.I feel like im dying a slow death. I went to a new neuro 3 days ago and it was the same old story he looked at me gave me the ordinary test and coudnt come up with anything. So as you can see i don't know what to do anymore all i want is to feel better again. I would somebodys opinion does this sound like lymes disease and if it is would I be alot worse off than i am after 9 months of being sick. They tested me for Lymes disease but they say I dont have it, I was tested by my normall doctor and also by the infectiuos disease doctor. As i said earlier i just started getting sore joints within the last 2 months or so, shoudn't you get them right away? And I mean there sore everyday all day for no reason at all. I was wondering maybe Lupus or something like that. But I live here in MN and Lymes disease is all over here plus I work outside and I also hunt so Its's possiable to have gotten it. Well I could go on about my symptoms but my fingers are hurting just typing this. Thanks for reading my post and sorry so long.
[QUOTE=kyle1]Hi Everyone, I'v posted here before awhile back I thought I had lymes disease. It's been 9 months since all my symptoms started back then I was talking to ticker about my symptoms, remeber me ticker Kyle from Minnesota?
Well anyway it's been a hell of a road for me. Back when this all started it was may and the symptoms consisted of this, dizzieness,weekness,severe tremors at night and all day, it always seem to get worse in the heat,brain fog,super light sensitive expecially at night to head lights on vehichles they seemed to be(streaking) like looking at the sun. Now most recenlty which would be about 10 months after this started I have joint pain mostly in my fingers, also muscle spasms all over, oh and severe back and neck pain all day long. So i took my self to the hospital and i was admitted and they ran some test one being a lumbar puncture and they found 1 protein cell and they thought i had menangitis which eventually came back negative. So the next day they did an mri and seen 4 lesions on my brain that they called unspecific. So i was sent to a neurologist you did a bunch of test which were, emg, ver, bloodwork, 2 hour mri, and they all came back negative. They were looking for MS so the neuro gave me inderall for the tremors and told me to come back in a year, real nice ha. So a month went by and I was getting worse so i went back to the neuro and demanded more test. They gave me referal to the invectious disease for a test for lymes disease and he was the same doctor who seen me in the hospital when he walked in the room he told me before he even sat down or did any test he goes if your looking for a lymes dignoses your crazy because you dont have it, I was just about ready to walk out of the room. Well at about this time i was ready to give up i thought i was at a dead end and this was how i was gonna feel the rest of my life. So here i am 10 months later still feeling this way and I cant get a doctor to take me serious. I was going to schol to be a cop and since this has startred of giving up on my future because i just cant focus anymore.I feel like im dying a slow death. I went to a new neuro 3 days ago and it was the same old story he looked at me gave me the ordinary test and coudnt come up with anything. So as you can see i don't know what to do anymore all i want is to feel better again. I would somebodys opinion does this sound like lymes disease and if it is would I be alot worse off than i am after 9 months of being sick. They tested me for Lymes disease but they say I dont have it, I was tested by my normall doctor and also by the infectiuos disease doctor. As i said earlier i just started getting sore joints within the last 2 months or so, shoudn't you get them right away? And I mean there sore everyday all day for no reason at all. I was wondering maybe Lupus or something like that. But I live here in MN and Lymes disease is all over here plus I work outside and I also hunt so Its's possiable to have gotten it. Well I could go on about my symptoms but my fingers are hurting just typing this. Thanks for reading my post and sorry so long.[/QUOTE]My aunt had Lymes but they took so long to diagnose her refusing to believe some one in Texas could have Lymes, that she eventually had a Vetinarian tell her to ask for a specific test. She did and it came back positive for Lymes. By then she had experienced both wrists had to have surgery because arthritis like problems had disintegrated the tendons in both her wrists. They put her on IV antibiotics in the hospital. Now she has to go in about one time per year for those same antibiotics. She is now in her 60's. She has damage in both feet and both wrists.





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