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Hi Everyone, I'v posted here before awhile back I thought I had lymes disease. It's been 9 months since all my symptoms started back then I was talking to ticker about my symptoms, remeber me ticker Kyle from Minnesota?
Well anyway it's been a hell of a road for me. Back when this all started it was may and the symptoms consisted of this, dizzieness,weekness,severe tremors at night and all day, it always seem to get worse in the heat,brain fog,super light sensitive expecially at night to head lights on vehichles they seemed to be(streaking) like looking at the sun. Now most recenlty which would be about 10 months after this started I have joint pain mostly in my fingers, also muscle spasms all over, oh and severe back and neck pain all day long. So i took my self to the hospital and i was admitted and they ran some test one being a lumbar puncture and they found 1 protein cell and they thought i had menangitis which eventually came back negative. So the next day they did an mri and seen 4 lesions on my brain that they called unspecific. So i was sent to a neurologist you did a bunch of test which were, emg, ver, bloodwork, 2 hour mri, and they all came back negative. They were looking for MS so the neuro gave me inderall for the tremors and told me to come back in a year, real nice ha. So a month went by and I was getting worse so i went back to the neuro and demanded more test. They gave me referal to the invectious disease for a test for lymes disease and he was the same doctor who seen me in the hospital when he walked in the room he told me before he even sat down or did any test he goes if your looking for a lymes dignoses your crazy because you dont have it, I was just about ready to walk out of the room. Well at about this time i was ready to give up i thought i was at a dead end and this was how i was gonna feel the rest of my life. So here i am 10 months later still feeling this way and I cant get a doctor to take me serious. I was going to schol to be a cop and since this has startred of giving up on my future because i just cant focus anymore.I feel like im dying a slow death. I went to a new neuro 3 days ago and it was the same old story he looked at me gave me the ordinary test and coudnt come up with anything. So as you can see i don't know what to do anymore all i want is to feel better again. I would somebodys opinion does this sound like lymes disease and if it is would I be alot worse off than i am after 9 months of being sick. They tested me for Lymes disease but they say I dont have it, I was tested by my normall doctor and also by the infectiuos disease doctor. As i said earlier i just started getting sore joints within the last 2 months or so, shoudn't you get them right away? And I mean there sore everyday all day for no reason at all. I was wondering maybe Lupus or something like that. But I live here in MN and Lymes disease is all over here plus I work outside and I also hunt so Its's possiable to have gotten it. Well I could go on about my symptoms but my fingers are hurting just typing this. Thanks for reading my post and sorry so long.
Hey Kyle,

Go back and reread tickers LYME DISEASE INFORMATION and I would suggest that you read the book she mentioned. I got my copy from my local library when I first started researching Lyme...

My doctors thought I had some rare, rare condition and I cannot remember the name of it. They were more concerned with my rapid heart beat/high pulse rate and ignoring my other complaints.

I read you’re other posts and you sound so much like I did before I was diagnosed. I am not saying you definitely have Lyme as I am not a doctor but it is very suspicious… Why did the infectious disease doc say you are not infected? Was it because your test was negative?

I tested negative twice, finally tested positive through Igenex lab. However, I was lucky as many never test positive... The babesia made me terribly sick on top ot the lyme. I am still fighting Lyme and Bartonella but thank god that babesia is under control. Have you read about co-infections?

I could not walk up or down the steps w/o my legs shaking. I could not lift a pot of water, carry groceries or open jars. I was so weak and afraid I had MS... I was so tired and would actually sleep all day. I cannot count the number of days I missed work.

My eye twitched all the time, then it quit and it moved to my body. Sometimes it felt like fireworks were exploding throughout my whole body. Twitch, Twitch, Twitch... You could actually see it.

I had a hard time swallowing, chest pain, head pressure, air hunger, my butt, feet, hands, legs hurt among other things. I felt like bugs were crawling in my ankles and head, buzzing feelings, flushing, severe nausea, blurred vision, weird sensations throughout my body which are very hard to explain, my arm jerked, numbness in hands, feet, toe, shaking and the list goes on...

I was a very active person before this… If you feel this could be Lyme please see an LLMD. There are many misdiagnosed with MS, Lupus, Fibro, CFS, ALS… I know a lady in NJ that was diagnosed with MS in 99 and just found out in August that she has Bartonella which is another tick borne disease.
[QUOTE=kyle1]Hi Everyone, I'v posted here before awhile back I thought I had lymes disease. It's been 9 months since all my symptoms started back then I was talking to ticker about my symptoms, remeber me ticker Kyle from Minnesota?
Well anyway it's been a hell of a road for me. Back when this all started it was may and the symptoms consisted of this, dizzieness,weekness,severe tremors at night and all day, it always seem to get worse in the heat,brain fog,super light sensitive expecially at night to head lights on vehichles they seemed to be(streaking) like looking at the sun. Now most recenlty which would be about 10 months after this started I have joint pain mostly in my fingers, also muscle spasms all over, oh and severe back and neck pain all day long. So i took my self to the hospital and i was admitted and they ran some test one being a lumbar puncture and they found 1 protein cell and they thought i had menangitis which eventually came back negative. So the next day they did an mri and seen 4 lesions on my brain that they called unspecific. So i was sent to a neurologist you did a bunch of test which were, emg, ver, bloodwork, 2 hour mri, and they all came back negative. They were looking for MS so the neuro gave me inderall for the tremors and told me to come back in a year, real nice ha. So a month went by and I was getting worse so i went back to the neuro and demanded more test. They gave me referal to the invectious disease for a test for lymes disease and he was the same doctor who seen me in the hospital when he walked in the room he told me before he even sat down or did any test he goes if your looking for a lymes dignoses your crazy because you dont have it, I was just about ready to walk out of the room. Well at about this time i was ready to give up i thought i was at a dead end and this was how i was gonna feel the rest of my life. So here i am 10 months later still feeling this way and I cant get a doctor to take me serious. I was going to schol to be a cop and since this has startred of giving up on my future because i just cant focus anymore.I feel like im dying a slow death. I went to a new neuro 3 days ago and it was the same old story he looked at me gave me the ordinary test and coudnt come up with anything. So as you can see i don't know what to do anymore all i want is to feel better again. I would somebodys opinion does this sound like lymes disease and if it is would I be alot worse off than i am after 9 months of being sick. They tested me for Lymes disease but they say I dont have it, I was tested by my normall doctor and also by the infectiuos disease doctor. As i said earlier i just started getting sore joints within the last 2 months or so, shoudn't you get them right away? And I mean there sore everyday all day for no reason at all. I was wondering maybe Lupus or something like that. But I live here in MN and Lymes disease is all over here plus I work outside and I also hunt so Its's possiable to have gotten it. Well I could go on about my symptoms but my fingers are hurting just typing this. Thanks for reading my post and sorry so long.[/QUOTE]My aunt had Lymes but they took so long to diagnose her refusing to believe some one in Texas could have Lymes, that she eventually had a Vetinarian tell her to ask for a specific test. She did and it came back positive for Lymes. By then she had experienced both wrists had to have surgery because arthritis like problems had disintegrated the tendons in both her wrists. They put her on IV antibiotics in the hospital. Now she has to go in about one time per year for those same antibiotics. She is now in her 60's. She has damage in both feet and both wrists.





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