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Hi - it's been years (@7) now since I have been treated for Lyme (doxy). Initially, I went months and to sooo many docs and then finally, back to my PCP before receiving treatment.

Primarily, I had been suffering from joint pain in nearly every joint on my left side from my shoulder to my foot and even big toe. A couple months following the onset of the initial symptoms - extended to my other shoulder too. And, I believe this to be about the time there were hints of some neurological symptoms.

The good news was that, although it was close to a very painful, 6 month journey - I did finally start on a 3-week course of doxy. Most all the joint pain subsided within a week - my PCP said this verified to him that I had Lyme - or another tick-borne bacteria, despite the negative tests. Oddly though, I did have a + result when the tests were repeated by my ortho 4 years ago.

I did not go back on antibiotics for the 'Lyme'- although it has taken just as many years and several courses of other antibiotics to get rid of a recurring (nearly every month!!!) sinus infection and URI. In fact - just this past January my PCP put me on a round of antbiotics for 3 weeks - and I have not had a reoccurrence of these infections (finally!!).

But back to the joint pain - after the doxy worked and 'most' of the joint pain went away...I was still left with pain in my hip region. Months later, I also had pain in my back (lumbar).

Just this past January - I was finally diagnosed with lumbar spinal stenosis...caused by arthritis. the leg pain is referred pain from the spine.

I've read up a little bit, on the net about the Lyme/Arthritis, and what I've experienced appears to follow suit.

So this is a two-part inquiry:

Though I've been finally treated for the spinal stenosis, I have not had much pain relief - but the couple days that I've been pain-free as well as some days that the pain is 'tolerable'...I feel as though it's easier for me to concentrate and mood-wise I am much happier and find that I don't become so easily overwhelmed.

I have other neuro symptoms as well - but I hadn't been 'pain
free' long enough to make any correlations between these symptoms - and neuro symptoms cause by the pain.

now, my questions - have others with Lyme-related arthritis been diagnosed iwth spinal stenosis and how has your treatment experience been?

Is there really neuro-symptoms from pain like I have experienced from the condition I have - or could the symptoms be strictly Lyme-related?

And how the heck do I get rid of these neuro symptoms without having to see a shrink who's going to blame it on my mother (we've had a decent relationship since I've been stricken with the symptoms - she had nothing to do with the Lyme - honest) - and I don't want to go on psychiatric meds.

all these symptoms vary in ranges from mild to moderate: obsessive-compulsive, short term memory loss, confusion, speech difficulties, mental fatigue, paranoia, depression, anxiety...just to name a few! These symptoms often are 'managable' but still are disruptive to my life.

So I have two major Lyme-related conditions - arthritis and neuro syptoms...how are these usually treated?

Thanks so much!

Pam
Pam,
If this is Lyme long term antibiotics will make the neuro and pain stop eventually. Lyme is a multi systematic disease and can cause so many problems. Three weeks is not long enough for you. Knowing what I know now 3 weeks is not long enough for early lyme either. If a dog is given six week for early lyme what does that tell you?

A lady in my area was diagnosed early and it still took 9 months to get things under control. Have you read the book ticker mentioned under the post titled LYME DISEASE INFORMATION? Your local library should have it. I suggest you read this book and keep researching the web.

The fact that you have tested positive would make me think this is lyme and possibly co-infections causing you to feel the way you do. I am not a doctor and this is just my opinion… but if I were you I would find an LLMD and run as fast as I could to his office.

Lyme does not go away it only gets worse. Any PCP that tells you 10 days of doxy cures lyme is dead wrong. You can continue to believe what this guy is telling you or you can take you health into your own hands. I would suggest the latter…

Had I listened to my doctors I would still be miserable. I had not very felt well since the early nineties but the symptoms were mild. Mostly sinus infections, numbness, TMJ, URI, joint pain, ringing ears, fatigue… Things were getting a little worse year by year…

Then in June 2001 I got a bad case of poison ivy and was prescribed prednisone. That was the beginning of a very miserable time in my life... Steroids suppress the immune system and the Lyme… went out of control. Looking back it was probably a blessing in disguise but I thought I would die before finding out what was wrong.





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