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Lyme Disease Message Board


Lyme Disease Board Index


Hi gmcnj, welcome to the board :)

Have you been tested for all the co-infections that ticks can transmit--Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma? This is important becaue many people who have Lyme are co-infected. Being co-infected will affect treatment choice and progress. Many Lyme doctors feel the co-infections need to be treated first for Lyme treatment to be effective. Are you seeing a Lyme knowledgeable doctor?

IV Rocephin can be given as an infusion drip (when the medicine drips from an IV bag into the vein) or by a syringe infusion (when the medicine is injected into the vein in a four to five minute infusion). Usually a person has a PICC line located in the arm where the infusion line is attached for the meds to go in. It sounds very complicated but it really is not once you get used to it. Full instruction is given to the patient before they infuse on their own. There is no way to say how long it is needed because each case is different. Long-term IV is typical when treating Lyme.
Ticker, thanks so much for the reply. I know I've tested positive for the past two years for mycoplasma. Not sure about the others...honestly, it's all a bit overwhelming. I have my first appointment tomorrow since the lyme diagnosis came in last week, so I will be sure I will ask about these specific co-infections. My doctor is a rheumatologist, and, I believe, very well respected, though considered to be somewhat 'controversial' by some of her contemporaries for her treatment theories. I came to her after two years undiagnosed (and basically treated poorly) in an HMO (which, fortunately for me, folded). She has always suspected lyme, but I always tested negative (including after an expensive 5-week urine test). It wasn't until I changed health insurance again this year that she was able to do a test at MDL that came out positive. Regardless, she's treated me for reactive arthritis for the past 18 months with various antibiotics (Pen VK, Augmentin, Cefzil, Cipro) for the infections that have shown up before. I've herxed pretty badly the whole time, but started herxing like mad when she switched me to Doxy a few months ago. So while I don't know that she's specifically an "LLMD" she is very thorough, and has pursued the lyme angle zealously. I'm really ready to move to whatever the next level is...four years of this has been enough! I can't believe how many stories I'm reading of people who have suffered so much longer :(





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