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Lyme Disease Message Board


Lyme Disease Board Index


Hi Peeps, welcome to the board :)

Lyme disease can cause many different symptoms and affects people individually. Only about 50% of people who have Lyme ever get a rash. Although a bullseye rash is a definite sign of Lyme disease, rashes can vary. They can also occur anywhere, not just at the bite site. It is a good idea to get a photo of your rash. Before photographing, place something near the rash like a coin or ruler to give it size defintion. That way you have evidence of it. Many people who have Lyme were first diagnosed with other illnesses, including Fibromyalgia.

It is good that you saved the ticks, they can be tested at IgeneX Lab in Palo Alto, CA. I believe they do not want the tick to be alive (who could blame them?!). They can test both ticks together for the price of one.

Elevated liver enzymes happens to many people who have Lyme. You are right, no test is completely reliable. Still, it is very important to use a Lyme reputable lab, such as IgeneX, for testing. Besides Lyme, ticks can transmit several co-infections--Babesiosis, Bartonella, Ehrlichiosis (HME & HGE), and Mycoplasma. It is important to be tested for these because many people who have Lyme are co-infected. Swollen glands can be one symptom of
Bartonella.

It is extremely important to see a knowledgeable doctor. Many doctors do not understand Lyme and follow outdated protocols. Where do you live?
[QUOTE=ticker]Hi Peeps, welcome to the board :)

Lyme disease can cause many different symptoms and affects people individually. Only about 50% of people who have Lyme ever get a rash. Although a bullseye rash is a definite sign of Lyme disease, rashes can vary. They can also occur anywhere, not just at the bite site. It is a good idea to get a photo of your rash. Before photographing, place something near the rash like a coin or ruler to give it size defintion. That way you have evidence of it. Many people who have Lyme were first diagnosed with other illnesses, including Fibromyalgia.

It is good that you saved the ticks, they can be tested at IgeneX Lab in Palo Alto, CA. I believe they do not want the tick to be alive (who could blame them?!). They can test both ticks together for the price of one.

Elevated liver enzymes happens to many people who have Lyme. You are right, no test is completely reliable. Still, it is very important to use a Lyme reputable lab, such as IgeneX, for testing. Besides Lyme, ticks can transmit several co-infections--Babesiosis, Bartonella, Ehrlichiosis (HME & HGE), and Mycoplasma. It is important to be tested for these because many people who have Lyme are co-infected. Swollen glands can be one symptom of
Bartonella.

It is extremely important to see a knowledgeable doctor. Many doctors do not understand Lyme and follow outdated protocols. Where do you live?[/QUOTE]

Hi Ticker,

Thanks for your reply and for the welcome.

I live in MN. I see that you responded to someone else that you did not know of a doctor in this state. Do you know of any websites or other sources to locate a suitable doctor to diagnose and treat Lyme? I will post a message with that heading also.

Thank you for the info about the elevated liver tests in regard to Lyme and the info on swollen glands and Bartonella.

I was reading another thread where the IgeneX lab was discussed. This is good to know! My labs were done by LabCorp and only reported a Total #, no bands. Also, in regard to the IgM test, the lab states that it may peak at 3-6 weaks post infection and then may gradually decline. This test was run at least 3-4 months after I was bitten by the deer tick. I have been reading excerpts from Karen Vanderhoof-Forschner's book (online - until I get a copy), and her book states the same.

Thank you also for the info on testing the ticks through the IgeneX lab.

I also took a photo of the rash tonight. I don't believe it is going anywhere (the rash on my thigh, not at bite site - didn't have one there), as it has been around for months now and only getting worse. The doc (that never bothered to look at it) prescribed Elidel. I had asked him if I could get something for the skin behind my ears that had gotten so bad with splitting open. He never looked at that either. I guess it must be one cream fits all kind of thinking, have no reason to look at the problem.......! When he told me he was going to prescribe Elidel (I knew it was one used for eczema) for the ear area, I told him I had a bad rash on my leg too and hopefully it would help that - so much for getting that looked at. I have used the cream on both and it has helped. BUT, I was not comfortable with the fact that he never looked at the one on my thigh, in case it was relevant to the tick bite for some reason, so I have stopped using the cream on it, until SOMEONE looks at it! However, it is driving me nuts with the itching and getting much larger and worse. SO, I took the photos, in case I can't put up with it before seeing a doc and have to go back to the cream, making it more difficult to diagnose after using it. I was also reading in the book excerpts (mentioned above): [Lyme disease]"...damage potentially includes chronic or relapsing problems of the SKIN, joints, muscles, eyes, heart, and neurological system. Less often, some combination of liver, lung, bladder, spleen and gastrointestinal ailments is also present. By the time these more severe symptoms appear, the disease can be securely lodged in the body, difficult to diagnose, and much harder to treat. Later, symptoms also imitate other illnesses and can easily be misdiagnosed." The skin referrence peaked my interest in regard to my problems.

Thanks again for your reply and your help. I appreciate it! I hope this finds you doing okay?! Best Wishes!





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