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Gretchen
Moved from Groton, MA in March 2003 to Raleigh-Durham Area, NC
Was diagnosed with Fibromyalgia, CFS, Epstein Barr Virus, IBS, GERD with in 6 months prior to lyme diagnosis, a couple years before was diagnosed with Costochondritis.

Diagnosed October 2004 - Lyme (IgM equivocal, IgG Positive) , Babesiosis positive with FISH test - Whole Blood negative, and Ehrlichiosis (HGE and HME). Was tested twice through conventional labs - everything negative including coinfections - went through IgeneX and was positive for the infections above - this is ridiculously scary to me that the labs are so different...

Symptoms may have started as early as 2002, although I may never know since I do remember fighting water on the knee, knee pain, and chest pain at age 17 while on the track team...Had migraines with aura since 16 (these run in my family - 7 generations on my Father's side)

Back in January 2002 had to quit working for a few months due to extreme migraines and visual issues that resolved after a couple of months of stopping work. Had fatigue too. I had my eyes checked and went to my neurologist. This would all worsen around that time of the month. Thought this could due to the poor diet from eating out all the time, the stress, and sick building syndrome since they started remodeling the building where I worked.

December 2002 - Did a 129 mile row athon on my indoor rowing machine - Did this in three weeks Nov-Dec - felt the best I ever have. This was extremely taxing on my body though.

In Jan 2003 went hiking one day in Groton, MA and ended up in the ER unable to catch my breath...went through extensive cardiac and pulmonary tests and bloodwork for blood clots...all came back negative...had this strange breathing and rib pain/chest pain for three months than seemed to resolve.

My friends have reminded me during this time I did have strange symptoms everytime we spoke - pain in knee.

In March 2003 took a new job. Was on my feet all day. I started having hip pain. Blamed it on my shoes.

In August 2003 went to Nantucket. Had a bout of double vision and neuromuscular issues for 4 hours - thought it was because I took and ibuprofen and then four hours later took an acetamenaphin product - found out later from a pharmacist if I took them that far apart not the meds. I am certain now I was bitten here.

After this trip had severe back pain in the morning upon waking - I would wake up and could hardly roll over but then I would get moving and it would improve. Started having extreme sensitivity to light but chalked up to Migraines. Started to prepare for teh move in Sept. 2003 - lots of stress.

Moved March 18th 2004. I got my period that day - the heaviest flow I had in a long time - chalked it up to stress. There were ticks everywhere this Spring where we live. My dog got sick with an autoimmune disease the third week of April. This was after multiple tick bites. I have now found an article tieing babesiosis with it. I then got sick the weekend of May 16th - my anniversary. We went away to the beach and on Sunday I got out of the car and almost passed out. I got this feeling like I was being electrocuted. Thought it was low blood sugar...went to get a snack - walked into the store and felt total disassociation. From that day on now these symptoms:

-Lower Left quadrant pain
-Then all over digestive tract pain
-Extreme IBS symptoms for three weeks - mucous, diarreah alt. constipation - pain would wake me up at 4 a.m.
-hemmroids (never had these)
-Low Body Temperature
-Low Blood Pressure
-Nausea
-Lost 15 lbs. in three weeks
-Loss of Appetite
-Severe dizziness - would wash over me at least 5 times a day and felt like I was going to pass out.
-Vertigo
-Insomnia though exhausted (CNS buzzing, restless legs)
-Legs bruising
-Wandering little rash that was like little chigger bites (little red dots)
-Extreme neck and back pain
-Heart Palpitations and Extreme Chest Pain (especially morning)
-Heart Thumping
-Exercise Intolerance
-Intolerance to Alcohol and Caffeine
-Cold Shakes and Sweats - will get this sudden energy boost - will break out in a sweat from head to toe then get freezing cold and shake - this has happened after a massage, running, and drinking caffeine...weird!
-Visual Issues - extreme light sensitivity - eyes don't adjust to light or dark quickly - Floaters - periferal vision every now and then shadows
-Menstrual cycles not regular, flow extremely heavy
-Sometimes not hungry, sometimes ravenous
-Moody, Depressed at times
-Short term Memory Loss
-Severe Migraines with Aura
-Feelings of Panic
-Feel like swallowing was difficult sometimes
-Extreme muscle fatigue and heaviness especially in thighs and back of legs, it is like sciatica - starts literally at the center of my rear and then radiates down the left leg - comes and goes day to day - then my arms became heavy later
-Hair Loss
-Pain in Feet
-Extreme Fatigue
-Muscle Spasms of the Eyes
-Numbness - Butt and lower back
-Varicose Veins in legs
-Veins protruded in Arms especially when exercising
-Urinary Tract Pain - feeling like urine is being lost from the bladder but internally - very strange sensation
-Extreme Muscle Pain
-Extreme Startle reflex
-Muscle Twitches - shoulder, legs, and biceps.
-Brain Fogginess
-Extreme Adrenal Fatigue - didn't have enough energy to even get stressed about anything.

Ok - I might be forgetting some - good grief that is a long list.

I did a Doxycycline trial on my own back in August - herxed big time - ended up in the ER thinking I was having a heart attack...experienced parathesis in my right arm. Thought I was having a stroke.

Cipro and Flagyl for two weeks end of October before starting official treatment - this was for bacterial growth in stomach.

November 1st - started treatment - Orals - Zithromax 500 mg and 2 TBS. of Mepron a day for Babesia -
December 1st - Zithromax 750 mg and 200 mg Minocin for three weeks
This week - One week of Flagyl by itself
January 1st - I will start Septra (can't remember how much - I think 1000mg a day) with 200 mg Minocin for three weeks then Flagyl the last week by itself.

I am getting better slowly but surely. The dizziness and heart palps are virtually gone. Joint Pain has gotten worse with treatment, foggy brain has gotten a lot worse with treatment - part of herxing.





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