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Lyme Disease Message Board


Lyme Disease Board Index


Thank you SOOOOO much. Laurie, your story..I don't even know what to say except if there is one good thing that can come out of other's suffering it is that others may learn from it and try to avoid that same pitfall. I am so sorry that you and your son had to go through that hell. I hope he is doing better. What a process you had to go through.....We begin to doubt ourselves..yes...

It feels like it's the LLD's vs. the nonLLD's and LLD labs vs. the nonLLD labs and we are in the middle. I read somewhere that quest was considered the "junk" lab? As much as my PCP is a wonderful person, like ticker said you don't go to a PCP for lyme which is why he sent me to an ID specialist for a second opinion. The ID made some very good points about ruling out other things but was sooooo convienced that I do not have lyme because, "only 2 times out of 4 did I get a rash". Well we all know that stats on that. I will not even go into my symptoms - they are classic for long term lyme - bottom line. Yes, it could be MS or Lupus or Adrenal, but these are my test results from Igenex on 11-04. I don't mean to present like a insecure freak but that is what I am feeling like and it helps to have the feedback....
IgM - Positive
18+
23-25++
30+/-
31++++
34+/-
39+
41+
45+/-
58+
66+
93+/-

IGG
30+/-
31+++
34+/-
39+/-
41+
45+/-
58+
66+

Then Quest on 1-23-05 says 'Nonreactive" across the board and ID says, "No you do not have Lyme, some Labs like to give false positives - get off the meds immediately".

I read last night that someone could test false negative is they are on or have recently been treated with anitibiotics! Hello, for the past 2 months and 1 week IV.


Ekim1111....Thanks for the question...The only thing that I am feeling on the doxy is extreme, extreme fatigue and exhaustion, some jaw pain and a bit of brain fog - not as bad as when I was taking the Zythro. and Ceftin orally. I keep a log of my symptoms and should get back on track with tracking.

Based on clinical symptoms and Igenex lyme is what I have.

Thanks for all the insights.
TG





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