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Well at the request of my PCP I got another Lyme test run.... I am currently on IV Doxy and being treated by a LLD in NY. My primary wanted to run another test and have me get a second opinion by a I.D. doctor in Jersey to make sure that treatment protocol was ok. I tested positive by Igenex and met criteria for CDC for both IgG and IgM. More recent test done at quest show zero infection - nothing. The I.D. and my primary are telling me to stop all treatment and get the PICC line out - that I do not have infection.

So now what? They want to rule out MS and Adrenal issues and feel that since the recent Quest results came back negative I should not be on IV antibiotics.

Could someone please tell me which lab of these 2 are most repetable? Now I am wondering if my symptoms are NOT lyme. I am more confused now then ever. I understand Igenex to be the go to Lab, but now I am fearful that they have a high rate of false positives and that maybe I do not have lyme.

I am so confused! I thought I wanted a second opinion but now I regret it!

TG
Hi sorry about the confussion your going through, this seems to be a Lyme rule, get confussed.

I would like to ask you how do you feel on the Doxy? Did you feel sicker while using it, or when first started. Do you see any improvements of your symptoms in anyway?

You have to kind of dig down in your heart, listen to good doctors, but for me I had to come to terms through symptoms and responses to treatment that I was positive. Didn't care what any test said at all.

The CDC said I didn't have Lyme, my doctor yelled to me my first appointment I have Lyme, and Igenex confrimed it. But I didn't believe a thing until I felt the herxing from the treatment and started to improve in many ways. Listen and hear what your body is telling you, doctors could drive on crazy.
Thank you SOOOOO much. Laurie, your story..I don't even know what to say except if there is one good thing that can come out of other's suffering it is that others may learn from it and try to avoid that same pitfall. I am so sorry that you and your son had to go through that hell. I hope he is doing better. What a process you had to go through.....We begin to doubt ourselves..yes...

It feels like it's the LLD's vs. the nonLLD's and LLD labs vs. the nonLLD labs and we are in the middle. I read somewhere that quest was considered the "junk" lab? As much as my PCP is a wonderful person, like ticker said you don't go to a PCP for lyme which is why he sent me to an ID specialist for a second opinion. The ID made some very good points about ruling out other things but was sooooo convienced that I do not have lyme because, "only 2 times out of 4 did I get a rash". Well we all know that stats on that. I will not even go into my symptoms - they are classic for long term lyme - bottom line. Yes, it could be MS or Lupus or Adrenal, but these are my test results from Igenex on 11-04. I don't mean to present like a insecure freak but that is what I am feeling like and it helps to have the feedback....
IgM - Positive
18+
23-25++
30+/-
31++++
34+/-
39+
41+
45+/-
58+
66+
93+/-

IGG
30+/-
31+++
34+/-
39+/-
41+
45+/-
58+
66+

Then Quest on 1-23-05 says 'Nonreactive" across the board and ID says, "No you do not have Lyme, some Labs like to give false positives - get off the meds immediately".

I read last night that someone could test false negative is they are on or have recently been treated with anitibiotics! Hello, for the past 2 months and 1 week IV.


Ekim1111....Thanks for the question...The only thing that I am feeling on the doxy is extreme, extreme fatigue and exhaustion, some jaw pain and a bit of brain fog - not as bad as when I was taking the Zythro. and Ceftin orally. I keep a log of my symptoms and should get back on track with tracking.

Based on clinical symptoms and Igenex lyme is what I have.

Thanks for all the insights.
TG
You are SOOOO much more positive than Mark!! AND--you will test neg. at quest after IV antibiotics for God's sake! We heard the same thing from3 ID specialists. Those and rheumie were the biggest idiots of the whole pack, I swear. All the rheumies want to do is give you drugs like antinflammatories or DMARDS, and all the IDs did was say that Mark's white count wasn't up so therefore, no infection. His sed rate was freaking 98!! ANA highly positive as well as ACE. Obviously there was inflammation going on but WHY was somthing no one seemed to care about. Throwing drugs at you for symptoms, or being made to feel like a fringe quack is all we ever got. I need to let all Mark's previous docs know what idioits they have been. I need to write them all letters. Hopefully it can help save someone else form having to go thru what he did.





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