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Female 50 years old
No positive Bb results.
Possible Anaplasmosis
Killer Cell Count 30
Symptoms:

Symptoms Since 2000
Left knee gives out when climbing steps – inconsistently -

Symptoms Since 2004
Right toe trips or drags on occasion
Fall down when thrown off balance
Inability to correct off balance or “catch myself”
Several months stiff neck in the morning – Tried changing positions,chiropractors, ortho pillows.
Insomnia – usually helped with melatonin
Occasional recurring rash on lower stomach – same location –no itching
Zero tolerance to alcohol – Progressively worsening
Progressive Symptoms Since April:
No real pain in muscles or joints
Menstrual Cycle stopped (no other symptoms of menopause)
Right hand cold/white –
Right side of face, tongue, and arm tingling and numb
Balance issues – right leg/hip muscles weak
Toe drop when walking –both feet
Trip often/fall easily – Legs and feet feel very “Heavy” Occasionally arms as well
Startled greatly by normal noises: Phone ringing, Car horn, dog barking, Toaster coming up
Symptoms Since start of 400 mg Doxycycline Daily –
-No noticeable difference of symptoms when started taking 200mg/daily -

First Week- 400 mg daily – all have since diminished
Constant Headache – located only in forehead area
Nausea – flushed feeling
Night sweats
Fatigued, body aches, exhausted

Since first week – Progressively – All listed since 2000 in addition:
Much Worsened Balance – Fall/trip more easily
Drop things I’m holding
Brain Fog
Can’t think of correct word usage – I am otherwise articulate!
Typing, handwriting, and small motor skills diminished
Spelling difficulty
Drift off into thought – daydream
Difficulty staying with a task through completion
Flushed feeling – Red face only – Chilled body temp - chilled
Electric shock sensation in lower legs
Lower leg tremors
Shuffling walk – tiptoe walking
Cry easily – overly emotional
Low energy/interest to do any activity
Chills/prickly feeling skin
Often have to clear throat
Red dots and small rash appearing sporadically on chest/stomach
Constant sense of falling over backwards
Pain and stiffness in muscles and joints – Moves daily from one location to another
Have been on 2 grams IV Rocephin since January.
When will symptoms improve????

What if it's not Lymes Disease???

Is there anyone that has had a similar experience?

Last summer I spent 3 days at Mayo in Rochester - Many things ruled out all things normal.
Three years ago I was white-water rafting and jogging!!!
Only went to the doctor for an annual exam- Never sick!
I know neurological issues take time to resolve - I just need some encouragement.
Female 50 years old
No positive Bb results.
Possible Anaplasmosis
Killer Cell Count 30
Symptoms:

Symptoms Since 2000
Left knee gives out when climbing steps – inconsistently -

Symptoms Since 2004
Right toe trips or drags on occasion
Fall down when thrown off balance
Inability to correct off balance or “catch myself”
Several months stiff neck in the morning – Tried changing positions,chiropractors, ortho pillows.
Insomnia – usually helped with melatonin
Occasional recurring rash on lower stomach – same location –no itching
Zero tolerance to alcohol – Progressively worsening
Progressive Symptoms Since April:
No real pain in muscles or joints
Menstrual Cycle stopped (no other symptoms of menopause)
Right hand cold/white –
Right side of face, tongue, and arm tingling and numb
Balance issues – right leg/hip muscles weak
Toe drop when walking –both feet
Trip often/fall easily – Legs and feet feel very “Heavy” Occasionally arms as well
Startled greatly by normal noises: Phone ringing, Car horn, dog barking, Toaster coming up
Symptoms Since start of 400 mg Doxycycline Daily –
-No noticeable difference of symptoms when started taking 200mg/daily -

First Week- 400 mg daily – all have since diminished
Constant Headache – located only in forehead area
Nausea – flushed feeling
Night sweats
Fatigued, body aches, exhausted

Since first week – Progressively – All listed since 2000 in addition:
Much Worsened Balance – Fall/trip more easily
Drop things I’m holding
Brain Fog
Can’t think of correct word usage – I am otherwise articulate!
Typing, handwriting, and small motor skills diminished
Spelling difficulty
Drift off into thought – daydream
Difficulty staying with a task through completion
Flushed feeling – Red face only – Chilled body temp - chilled
Electric shock sensation in lower legs
Lower leg tremors
Shuffling walk – tiptoe walking
Cry easily – overly emotional
Low energy/interest to do any activity
Chills/prickly feeling skin
Often have to clear throat
Red dots and small rash appearing sporadically on chest/stomach
Constant sense of falling over backwards
Pain and stiffness in muscles and joints – Moves daily from one location to another
Have been on 2 grams IV Rocephin since January.
When will symptoms improve????

What if it's not Lymes Disease???

Is there anyone that has had a similar experience?

Last summer I spent 3 days at Mayo in Rochester - Many things ruled out all things normal.
Three years ago I was white-water rafting and jogging!!!
Only went to the doctor for an annual exam- Never sick!
I know neurological issues take time to resolve - I just need some encouragement.
Female
Age 45
Bitten in 1999 or 2000, top of head couldn't see if I had a rash but did have a sharp hard spot for weeks after.

Had strange sensation in head like a shock or ripple.
confusion
word finding difficulty, can think of what word begins with but not word
shin pain
strange itching in feet when lay down for bed, goes away when I get up comes back when I lay down
foot, hand and face itching
foot pain, wake up with feet that feel like I have been standing hours
face discolored, people keep telling me makeup needs blended but not wearing any, stops right at jaw line
severe fatigue in body
mind fatigue (brain fog?)
right eye vision suddlenly went weird stayed that way 4 months but improved just not gone completely (lost 5% perifial (sp) but came back)
night vision problems
blurry vision
eye muscle twitching
muscle twitching
stabbing pains, anywhere jaw, chin, collar bone, legs, arms ect
severe calf pain both legs, affects walking
low normal temp, run low grade fever a couple weeks a month with chills
arm and hand pain, just holding a milk jug can feel like 50 lbs
loss of balance
ear pain, had mastoiditis twice last year
cysts in sinuses, 2 1/2 centimeters right and 2 centimeters left
told I limp sometimes but not aware
sound sensitivity, bubbles in pop can sounds like rain pounding on a tin roof
headaches
night sweats (or any time I sleep)
arms and legs go numb whenever they want
weight gain (inablility to do anything most the time with out resting a lot)
heart palpitations (especially when startled while sleeping) pair, multi PVC's, skip beats
Halucinate (told not true hals because I will realize orange lion is a towel draped on tub ect)
neck pain (gland back of neck always swollen)
All symptoms come and go, thankfully never all at once or I wouldn't have survived until finally getting diagnosed last week. Thank God for this board or I would have agreed with docs that said tests normal so your normal go to a therapist. (After reading list can almost think I am nuts except many of you have same symptoms)
Also as a child I remember being bitten by ticks many times. Always seemed to be in my ears.





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