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Lyme Disease Message Board


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Female
43
Onset of symptoms: February 2003

Severe fibromyalgia pain; started as point pain, but has progressed to where i have patches of skin (like inside knee to ankle area, inside wrist area from wrist to elbow) that are incredibly painful to the touch. it feels like there's tremendous inflamation or something. patches change locations constantly
Joint Pain
Horrific Fatigue
Severe Headaches
Memory Problems (cannot find particular word)
Concentration poor
Balance problems
Double/blurred vision
Ringing in Ears
Tingling at ends of extremeties
Eyes burning - dry & hot
Weight gain (but 50 percent of the time i'm in bed?)
Heart races really bad
Increase in blood pressure
Increase in cholesterol & triglycerides
Alcohol intolerance
nausea
stomach pain
difficulty swallowing
Low normal temperature (98 degrees) with frequent low grade fevers
Bone pain
Sleep problems
Profuse Sweating
Tongue Soars
Itchy all over
Jaw Pain
Depression

Not having a good time, that's for sure!
Female 50 years old
No positive Bb results.
Possible Anaplasmosis
Killer Cell Count 30
Symptoms:

Symptoms Since 2000
Left knee gives out when climbing steps – inconsistently -

Symptoms Since 2004
Right toe trips or drags on occasion
Fall down when thrown off balance
Inability to correct off balance or “catch myself”
Several months stiff neck in the morning – Tried changing positions,chiropractors, ortho pillows.
Insomnia – usually helped with melatonin
Occasional recurring rash on lower stomach – same location –no itching
Zero tolerance to alcohol – Progressively worsening
Progressive Symptoms Since April:
No real pain in muscles or joints
Menstrual Cycle stopped (no other symptoms of menopause)
Right hand cold/white –
Right side of face, tongue, and arm tingling and numb
Balance issues – right leg/hip muscles weak
Toe drop when walking –both feet
Trip often/fall easily – Legs and feet feel very “Heavy” Occasionally arms as well
Startled greatly by normal noises: Phone ringing, Car horn, dog barking, Toaster coming up
Symptoms Since start of 400 mg Doxycycline Daily –
-No noticeable difference of symptoms when started taking 200mg/daily -

First Week- 400 mg daily – all have since diminished
Constant Headache – located only in forehead area
Nausea – flushed feeling
Night sweats
Fatigued, body aches, exhausted

Since first week – Progressively – All listed since 2000 in addition:
Much Worsened Balance – Fall/trip more easily
Drop things I’m holding
Brain Fog
Can’t think of correct word usage – I am otherwise articulate!
Typing, handwriting, and small motor skills diminished
Spelling difficulty
Drift off into thought – daydream
Difficulty staying with a task through completion
Flushed feeling – Red face only – Chilled body temp - chilled
Electric shock sensation in lower legs
Lower leg tremors
Shuffling walk – tiptoe walking
Cry easily – overly emotional
Low energy/interest to do any activity
Chills/prickly feeling skin
Often have to clear throat
Red dots and small rash appearing sporadically on chest/stomach
Constant sense of falling over backwards
Pain and stiffness in muscles and joints – Moves daily from one location to another
Have been on 2 grams IV Rocephin since January.
When will symptoms improve????

What if it's not Lymes Disease???

Is there anyone that has had a similar experience?

Last summer I spent 3 days at Mayo in Rochester - Many things ruled out all things normal.
Three years ago I was white-water rafting and jogging!!!
Only went to the doctor for an annual exam- Never sick!
I know neurological issues take time to resolve - I just need some encouragement.
Female 50 years old
No positive Bb results.
Possible Anaplasmosis
Killer Cell Count 30
Symptoms:

Symptoms Since 2000
Left knee gives out when climbing steps – inconsistently -

Symptoms Since 2004
Right toe trips or drags on occasion
Fall down when thrown off balance
Inability to correct off balance or “catch myself”
Several months stiff neck in the morning – Tried changing positions,chiropractors, ortho pillows.
Insomnia – usually helped with melatonin
Occasional recurring rash on lower stomach – same location –no itching
Zero tolerance to alcohol – Progressively worsening
Progressive Symptoms Since April:
No real pain in muscles or joints
Menstrual Cycle stopped (no other symptoms of menopause)
Right hand cold/white –
Right side of face, tongue, and arm tingling and numb
Balance issues – right leg/hip muscles weak
Toe drop when walking –both feet
Trip often/fall easily – Legs and feet feel very “Heavy” Occasionally arms as well
Startled greatly by normal noises: Phone ringing, Car horn, dog barking, Toaster coming up
Symptoms Since start of 400 mg Doxycycline Daily –
-No noticeable difference of symptoms when started taking 200mg/daily -

First Week- 400 mg daily – all have since diminished
Constant Headache – located only in forehead area
Nausea – flushed feeling
Night sweats
Fatigued, body aches, exhausted

Since first week – Progressively – All listed since 2000 in addition:
Much Worsened Balance – Fall/trip more easily
Drop things I’m holding
Brain Fog
Can’t think of correct word usage – I am otherwise articulate!
Typing, handwriting, and small motor skills diminished
Spelling difficulty
Drift off into thought – daydream
Difficulty staying with a task through completion
Flushed feeling – Red face only – Chilled body temp - chilled
Electric shock sensation in lower legs
Lower leg tremors
Shuffling walk – tiptoe walking
Cry easily – overly emotional
Low energy/interest to do any activity
Chills/prickly feeling skin
Often have to clear throat
Red dots and small rash appearing sporadically on chest/stomach
Constant sense of falling over backwards
Pain and stiffness in muscles and joints – Moves daily from one location to another
Have been on 2 grams IV Rocephin since January.
When will symptoms improve????

What if it's not Lymes Disease???

Is there anyone that has had a similar experience?

Last summer I spent 3 days at Mayo in Rochester - Many things ruled out all things normal.
Three years ago I was white-water rafting and jogging!!!
Only went to the doctor for an annual exam- Never sick!
I know neurological issues take time to resolve - I just need some encouragement.





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