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[QUOTE=sleepygonzales]

[B]wonder what my doctor will say when i ask for a "western blot" test.. since im in sweden.. [/B]

[B]you said i didn't have to worry about ranting..[/B] :rolleyes:


[B]i can't seem to find the thread "CIARA LYME REOCCUR??[/B] "[/QUOTE]

Morning sleepyG,

Several things... First of all, rant on all you want. Now we know more of your story. Many relate to your last post about finding all the symptom lists and actually feeling relief that you might actually have LD. Especially after bouncing from doc to doc who don't have the descency to atleast say, 'I don't know what is wrong', rather than say, 'it's in your head'. :o

As for the Western Blot lab testing, I believe it is a world wide testing method for many things, not just lyme disease. You just happen to want a doc to run Western Blots for lyme disease. One thing you could do is print out the info on the Western Blot testing that Igenex Labs do. Having that in hand, would be better communication. Igenex Labs in Palo Alto, California.

And as for the Ciara lyme reoccur thread... I didn't really title it correctly.
Here is the part that I thought was interesting:
[COLOR=Blue]I had lyme disease - only symptom was knee and leg swelling. The disease never showed up in in my blood - only after three surgeries where the last one they took fluid and it came up positive.

I was on iv antibiotics for two months then two more months of oral til last December. I was doing great - pain was gone and only left with what they said was some lyme arthritis which I could deal with. Then suddenly this week my leg swelled so severly and the pain was intolerable. There is a bakers cyst on back of my leg that has filled with fluid almost all way down my leg. Doctor tried to drain and take some fluid but could barely get any but thought had enough to test for lyme.[/COLOR]

Sleepy, It is so frustrating to be sick and without a diagnosis, a competent doctor. I just feel and even deeper burden for you as you are in another country than most of here and I know 'we' wish we could hook you up with local support, doctors, etc. But hang on with us. I think you can get the treatment you need with perseverance. Just be selective with who you spend your time and money on. See what you can find out on the phone. Print of info from Lyme foundations that is clear and to the point (not too wordy) and take it with you.

Best of luck and my prayers are going out for you, cj
[QUOTE=cjFTWORTH]Morning sleepyG,

Several things... First of all, rant on all you want. Now we know more of your story. Many relate to your last post about finding all the symptom lists and actually feeling relief that you might actually have LD. Especially after bouncing from doc to doc who don't have the descency to atleast say, 'I don't know what is wrong', rather than say, 'it's in your head'. :o

As for the Western Blot lab testing, I believe it is a world wide testing method for many things, not just lyme disease. You just happen to want a doc to run Western Blots for lyme disease. One thing you could do is print out the info on the Western Blot testing that Igenex Labs do. Having that in hand, would be better communication. Igenex Labs in Palo Alto, California.

And as for the Ciara lyme reoccur thread... I didn't really title it correctly.
Here is the part that I thought was interesting:
[COLOR=Blue]I had lyme disease - only symptom was knee and leg swelling. The disease never showed up in in my blood - only after three surgeries where the last one they took fluid and it came up positive.

I was on iv antibiotics for two months then two more months of oral til last December. I was doing great - pain was gone and only left with what they said was some lyme arthritis which I could deal with. Then suddenly this week my leg swelled so severly and the pain was intolerable. There is a bakers cyst on back of my leg that has filled with fluid almost all way down my leg. Doctor tried to drain and take some fluid but could barely get any but thought had enough to test for lyme.[/COLOR]

Sleepy, It is so frustrating to be sick and without a diagnosis, a competent doctor. I just feel and even deeper burden for you as you are in another country than most of here and I know 'we' wish we could hook you up with local support, doctors, etc. But hang on with us. I think you can get the treatment you need with perseverance. Just be selective with who you spend your time and money on. See what you can find out on the phone. Print of info from Lyme foundations that is clear and to the point (not too wordy) and take it with you.

Best of luck and my prayers are going out for you, cj[/QUOTE]

the thought of having to get surgeries isn't that great.. but since i am sure i have lyme disease i guess i might be forced to at some point, cos they can't just give me a treatment based on what i think..





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