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When i first found out i had lyme early this year and did all the research and came onto this board i thought to myself, "why does it seem everyone is on some type of treatment for years!" i couldn't fathom that I would require such extensive treatment and honestly thought for whatever reason that i wouldn't. Man was i surprised.

my picc line is out, has been since April 12th. only on it for 3 weeks and from what Ticker said at too small a dose (which i agree). i felt wonderful, i mean perfect :: i even finally had a herx. But in reading my symptom journal (which i'm glad i started) i realize i am slowly but steadily relapsing. Not all of my symptoms have come back (only the muskoskeletal ones) and not with the same strength they had previous to the meds, but though i try and deny it :: i cannot, they are returning. my hands are doing the numb/tingle thing again, my hips and legs are screaming, thumb is beginning to lock up again, etc.. When i first starting coming here and read about people getting depressed i didn't get it :: I do now! before i was diagnosed and felt so much worse than now i lived with my pain because i thought it was just part of aging and just compensated for it in other ways :: once i felt really optimal from the abx it made me see just how horrible i felt before the abx and knowing now that i have lyme and seeing how i should be feeling if i was healthy, i am on a crusade to heal. But anyway, i go back to my dr on May 9th. we'll see what he says :: to be honest i am not relishing the idea of having another picc line.

I've been reading what you all have written about attacking lyme with a more natural approach so i made an appt with a naturopath :: i see her on May 7th. Samento seems like a possibility for me. If any of you who are treating naturally wouldn't mind, would you give me some idea of the combinations of treatment you're using. I spoke to the naturopath, seems her form of treatment is herbs, diet, supplements etc. Do i tell my dr that i am seeing her as well as seeing him?

Hope you all are doing well::
be well ::
carole
[QUOTE=sagedreamer]When i first found out i had lyme early this year and did all the research and came onto this board i thought to myself, "why does it seem everyone is on some type of treatment for years!" i couldn't fathom that I would require such extensive treatment and honestly thought for whatever reason that i wouldn't. Man was i surprised.

my picc line is out, has been since April 12th. only on it for 3 weeks and from what Ticker said at too small a dose (which i agree). i felt wonderful, i mean perfect :: i even finally had a herx. But in reading my symptom journal (which i'm glad i started) i realize i am slowly but steadily relapsing. Not all of my symptoms have come back (only the muskoskeletal ones) and not with the same strength they had previous to the meds, but though i try and deny it :: i cannot, they are returning. my hands are doing the numb/tingle thing again, my hips and legs are screaming, thumb is beginning to lock up again, etc.. When i first starting coming here and read about people getting depressed i didn't get it :: I do now! before i was diagnosed and felt so much worse than now i lived with my pain because i thought it was just part of aging and just compensated for it in other ways :: once i felt really optimal from the abx it made me see just how horrible i felt before the abx and knowing now that i have lyme and seeing how i should be feeling if i was healthy, i am on a crusade to heal. But anyway, i go back to my dr on May 9th. we'll see what he says :: to be honest i am not relishing the idea of having another picc line.

I've been reading what you all have written about attacking lyme with a more natural approach so i made an appt with a naturopath :: i see her on May 7th. Samento seems like a possibility for me. If any of you who are treating naturally wouldn't mind, would you give me some idea of the combinations of treatment you're using. I spoke to the naturopath, seems her form of treatment is herbs, diet, supplements etc. Do i tell my dr that i am seeing her as well as seeing him?

Hope you all are doing well::
be well ::
carole[/QUOTE]

I'm assuming that you went to an Infectious Disease Specialist with this as they tend to recommend shorter courses of therapy. In my opinion, when someone has engaged in IV Rocephin and seeing dramatic benefits from it, the doctor should take notice to this and recommend continuing the therapy for a little longer to see if any added benefit could be obtained. Even in the standard medical community 3 weeks isn't very long. I myself was on IV for 6 weeks before they pulled the line because I didn't notice a single benefit from its use.

From my own knowledge and discussing this with 3 Infectious Disease doctors and my home infusion nurse, most patients will stay on IV Rocephin anywhere between 4-8 weeks at a 2gm per day dose. The other thing I should mention is that its common practice for a physician to follow up IV Rocephin with a course of oral Doxycycline for another month or two, especially if symptoms are still present. The can often continue to show added benefits and insure against a relapse. I would seriously consider mentioning this to your doc and I hope he/she will take this matter seriously...if not, it may be time to move on to another. Forget herbals meds for now...rely on the standard medicine until all options are exhausted first.





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