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Lymes or ms
Sep 24, 2005
Hi Everyone, Alright I'v been going through hell for the last two years with symptoms of either ms or lymes. It started one day in a class I was taking for school for law enforcement. I started feeling really weird almost like I was losing my mind or losing control of myself. I started getting really dizzy and hot. I thought I was just coming down with the flu or something. Then I started having pain in my jaw, fingers, neck,back,toes,rist, and just all over. This kept going on and on and on. With in the last year or so I;v been havibg problems with my eyes almost as if I'm losing my vision. I have really bad streaking at night, halos, and in bright light I can;t even stand it at all it makes me even more dizzy then I'm already am. When this all started it got to the point that I coudn't stand it anymore and i went to the emergency room and demanded test be done for what ever this was. So they did an MRI,spinal tap, and a bunch of blood work. There was a little protein in the fluid but nothing to show lymes disease, nor did the blood work. But however my MRI showed 4 brain lesions so right away the doctor told me she was 80% sure I had ms and that I should go to a neuro asap and get checked out.So I did and that was about a year and a half ago, And i'v been back there 5 times since for checkups and what have ya and still no diognoses for ms yet. The neuro says the lesions are non specific for ms.So here I am my vision is getting worse I have muscle spasms constantly all over my body serious brain fog,arthrits in all my joints totally something is wrong and I cant get an answer. I'm almost done with law enforcement school and Im seriously thinking about not moving on because my memory is going by the day and so is my vision so that woudnt be good for a Police Officer. The bottom line is these doctors dont know nothing i dont think. Iv been to so many doctors in the last year it is sicking, I'v been to the reumy, infectious disease,family practice,ent and im sure there others just cant remember. So If theres anybody with any info i would be greatly appreciative.Sorry so long I just needed to vent.
Re: Lymes or ms
Sep 25, 2005
Hi Kyle,

Welcome to the board! It sounds to me that you may well have Lyme and one of it's coinfections called Babesiosis. The tests you had in the past were probably not very good tests. Lyme is not always easy to diagnose and all I can tell you is that you should be tested by a reputable lab such as IgeneX located in Palo Alto, CA as that is the most accurate lab in the U.S. I believe you should get the Western Blot test done by IgeneX.

You would need a doctor to sign for those tests. I was tested through Quest and Labcorp. and those labs are the worse!

It would also help if you saw a Lyme Literate Medical Doctor (LLMD) and if you tell us what city and state you live in, Ticker (our expert) can give you names of excellent doctors. Most doctors are not lyme knowledgeable and have no experience with lyme disease and how to treat it. So it is best if you see a recommended doctor.

I know many people who were diagnosed with MS only to find out years later that they really had Lyme.

Hope to hear from you soon,
Denise
Re: Lymes or ms
Sep 25, 2005
Hi Kyle. I am very sorry that you are still so sick. Many people who were diagnosed with Lyme were first diagnosed with MS, inclduing a friend of my mother's.

No Lyme test is completely reliable, and spinal taps show Lyme disease in less than 5% of cases. Lyme can cause brain lesions. Your symtpoms sound very much like Lyme and possibly the co-infections to me.

The most important thing you can do is see a Lyme knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Unfortunately, there are not many knowledgeable doctors and many people have to travel to see one. You are in MN right? I do not know of any Lyme doctors there. Maybe someone here can recoomend a doctor. The closest one to you that I know of is in Springfield, MO. His name is Dr. Charles Crist. He comes very highly recommended. I believe that he spreads out appointments for those who travel to see him.

Believe me, I know how difficult it is to have to fight so hard and go through so much to get the help you need, but your health is more important than anything. You have had other things ruled out which is always good to do. I hope you can find a way to get evaluated by a Lyme doctor soon. I would be very surprised if you don't have Lyme and/or the co-infections. You deserve to find out what is wrong and to get the help you need.

Keep us posted on how you are doing okay?
Re: Lymes or ms
Sep 25, 2005
I want to thank everybody who has posted to my complaint about whether or not I have MS or Lymes Disease. I know this does not sound good but if i have to chose on whether or not its lymes or ms I hope its lymes so i can at least treat it to some extent. I was wondering if I can go to my normal Doctor to have blood test done then send them to Dr. Christ for examining or do you have to go there and see him in person?

I want to say hi to Ticker, You and I have had phone conversations before about all this stuff that has been going on. I just hope that I can start to get some relief pretty soon because my carreer is in jeaoperdy over all this and I have been wanting to be a Police Officer my whole life and if this keeps up it's going to put a huge stop to my dreams. I have a Question for Ticker, If this is lymes and they do start treating me will the dizziness go away I mean like the brain fog and all that crap, I mean I can't even focus on anything, I can't remember anything it takes forever to think on how to do something that would normally take about 2 minutes takes about 10 minutes. Well I have hopes that It will get better.





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