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Lyme Disease Message Board


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Hi, I've been diagnosed with lyme disease and I've had symptoms for about a year (muscle pain, burning, tingling in extremities, some fatigue)

I'm considering having the IV treatment with Ceftriaxone aka Rocephin. Has anyone had this treatment? Did it help you? How long were you on it? Were there any side effects to watch out for? Anything you can tell me about your experience and wether it helped would be appreciated.

Thanks for your help!
:wave: gyyl....

welcome to the board. sorry that you have to be here, but i'm super glad you found this place. it took me a bout of luck to stumble across this site and i am so glad i did. you'll find lots of great people and info here.

as to your iv situation, there are quite a few of us taking iv's currently...we have a running thread called "PICC people". there's lots of info in it about dealing with side effects, herxs, and different meds, so that might help you out and give you some idea of what to expect. some of the people posting in that thread are seeing great improvements, while others like myself are seeing minor ones gradually. we're all different, but we give each other lots of support and encouragement along the way.

i have been on lots of oral antibiotics with very little results over the course of a 4 month period. then was put on iv rocephin for a first 6 week round over this summer, but saw little improvement but lots of herxes. so im thinking that it killed off a lot of keets but left a lot to be taken care of. i was some what nauseous, but mostly in lots of pain from the herxes. so after 6 weeks of a sort of pulse therapy, a couple days on, a few off the docs switched me to a new med. currently i am primaxin and have lots and lots of nausea and herxes, but slowly i am starting to see very little step of improvement. so that keeps me motivated to keep taking the icky stuff. the docs just extended my round of primaxin for another 4 weeks so we'll see where it goes from there.

anyway if you have other quetsions let me and the others know, if we have tried it, been there or heard of it we'll let ya know. stick around...this is truly like a little family. :)

shanna
Welcome gyyl
I too have a picc line. Tried rocephin for 2 wks, no herx, major diarreah. Turned out I have C Diff colitis. Rocephin kills good bacteria but not C Diff bad bacteria. On flagl for 2 wks, then back on ivs again. Come on over to the picc people thread. You will learn alot and meet lots of new lymie friends. We give each other strength and prayers. Marsha
Hi gyy, welcome to the board! I am sorry you have Lyme but it is good you will start treatment. Are you seeing a Lyme doctor? Were you tested for the co-infections that ticks can transmit--Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplamsa? This is important. Many people who have Lyme are co-infected.

Many people benefit from Rocephin. Length of treatment can vary individually. Doing IV infusions really is not hard once you get the hang of it. The most important thing is to keep the IV site clean and dry at all times. An infection could be deadly. If you ever have a question about how it looks or feels, call your doctor or nurse immediately. There is a great product you can get to cover the site so you can shower without getting it wet. It is called a mid-arm protector and you can get it at Brown Medical.

Good luck!
[FONT=Comic Sans MS]Hi, gyll and Welcome![/FONT]

[SIZE=2]I was on the i.v. Rocephin years ago for 4 weeks - herxed within about 2 weeks and then again within 2 weeks after the treatment was over and they would not extend it as I was "cured" (according to the ID doctor!) so I'd say that the I.V. rocephin worked well for me, but wish I could have had it longer....Good luck![/SIZE] :wave:

Gerri





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