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Lyme Disease Message Board

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Hello everyone. I haven't posted over here in a long while. I thought my docs had me figured usual I was wrong.

I have had problems for almost 10 years now. I have been told I had probable MS, then maybe Lyme and not Connective tissue disease.

I am doubting my docs again because I am feeling so poorly again. I have a couple of questions I was hoping someone could answer for me.

I know that steroids are a no no if you have been dx'd with lyme. I have been on a low dose of prednisone which I am weaning from now since October. In July when my family doctor humored the idea of lyme he put me on 30 days of Tetracyline. At about the 20th day the veins in my legs became prominent and were burning. I had numbness/tingling in my feet and very poor bloods circulation. My feet would turn a deep purple color. Than I got my results from Igenex. IGG 23-25 IND 30+ 31 IND 34 IND 39 IND 41+ 45IND 58+ 66 IND. IGM 31 IND 39 IND 41+ 58 IND. I also tested positive for B. Henselae IGG. My doctors all said that these are negative results.

I wasn't getting any better and because of the inflamation in my veins they started the prednisone. I did feel better when I first started it. My pain in my veins went away. I am now weaning off of it and I just recently had an abx for a UTI. A couple of days after starting the abx the pain in my legs returned along with alot more twitching in my face and other muscles.

I seem worse now than before I started the steroid. Like I said..I know steroids are a no no but has anyone else ever taken them for other problems and are you worse while taking them?

I am so confused at this point. I can't afford a LLMD at this point since I had to leave my job in August because of all this. I am not believing this mixed connective disease dx. All of my many labs for these diseases have always been negative.

Could someone please give me some advice? I just feel like screaming. To me my Igenex results seem more positive than negative but no one will listen to me.

Sorry so long and thank you so much for taking the time to read this.

Thanks, Deb

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