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hi burnt! don know about that.... but i am sure lots of peolple will come out with an answer.. but about the tests at igenex, the panel 5010, that includes the igg, igm, pcr, but i guess you will make it with the igg and igm, thats cheaper, and if you can afford, i suggest the co infeccions, they have pannels which is cheaper, and i you cant afford all, at least do the babesia microti, since the other co inffections use the same antibiotic as lyme, while the babesia, which is a parasite that is treated with same medice as malaria..good luck!
Hi Michelle,

Try to relax, okay? The wonderful thing is that you found this board! I don't like to use the "if" word but I am going to use it anyway :D "If" I had found this board when I first got sick, it wouldn't have taken me 5 years to get diagnosed. Oh well, I believe there's a reason for everything.

As far as the tests go, I believe Frango said the Western Blot Tests cost $95 each for the IgM and IgG.

IgeneX tests for antibodies, not the bacteria's themself. Our bodies make antibodies when fighting the bacterias. So the sooner you get the testing done, the better off you will be.

I think what you were talking about may be the ELISA test which is the most unreliable test of all.

Lyme spirochetes (or bacteria) do like to hide behind the eyes, joints, muscle tissue, brain, etc. causing problems.

Yes, it is possible to see a LLMD just to get a diagnosis and then you can decide if you want to use the "natural" route like I am which I told you that I am having great success with or you can go the "conventional" route which is antibiotics. Everyone has to make their own personal choice.

Education is also important to help beat this disease. Not only do I recommend Dr. David Jernigan's book, but I also recommend another book called "Everything You Need To Know About Lyme Disease and Other Tick-Borne Disorders, 2nd Edition" by Karen Vanderhoof-Forschner.

Your symptoms do sound like Lyme to me in my opinion. The faster you get tested the better off you will be. Please don't wait on this as you have a much better chance of beating this disease compared to other members who have had lyme for over 10 years, some have had it for much longer.

I truly believe you can be cured of this disease, so please think positive thoughts, okay? Lyme is curable, I promise you that.

Hang in there and let us know when you order the test kit.

I am sorry to hear of all you went through. You seem very strong and that is very important for facing anything. It is good that you have found hope in alternative treatment, I am a strong believer of it too. There are some infectious disease doctors in my insurance book. Did this doctor send your bood to igeneX free of charge, or did you have to pay for that out of pocket? Maybe I could see an infectious disease doctor and have him send the blood to igeneX so I don't have to pay for it. But to tell you the truth, I don't mind paying the $200 for the igeneX tests, I just can't afford the LLMD. I wrote doctor Cameron an email and asked if he takes my insurace, hopefully he does. I am just wondering about IgeneX. To what I understand they are a private lab and no matter what, whether you request a kit as a patient or a doctor sends the blood (like in your case), the patient will have to pick up the tab. I don't know for sure, I was told by some people, but if your doctor covered the igeneX work, maybe I could do it that way.... who knows what has changed in this time too.

Anyway, I will definitely look into Dr. Jernigan and keep him on the back burner until I get some tests. One more question, when I get the IGG and IGM tests from IgeneX, if they both come back negative, should I cross lyme off my list or is it still possible I have lyme and see a LLMD anyway? I hate to say this, but lyme is my last hope before I decide I probably am in the beginning stages of multiple sclerosis, and that just terrifies me! :eek:

Thank you, I appreciate all your feedback and hope you continue to do well with Dr. Jernigan's protocols.

Take care.
-- Michelle
thanks again everyone. one last question before i order the kit... igeneX makes it pretty easy to decide which kit to start with but I do have one question regarding this:

What Test(s) to Order

Based on our tracking, as well as input from our client physicians and our clinical consultant, the initial tests to order for Lyme disease are the IGeneX IgM and IgG Western Blot and PCRs. The Western Blots are used to determine if the patient is making antibodies. Since some patients do not make antibodies, the Lyme Serum PCR for DNA (# 453) or the Lyme Whole Blood PCR for DNA (# 456) is included in the initial panel.

Thus, the Initial Lyme Panel includes both Western Blots and your choice of PCR:

* Panel 5000:
#s 188, 189 & 453 (PCR—serum)
* Panel 5010:
#s188, 189 & 456 (PCR—whole blood)

now the way i interpret this is for $195 you get the western blot IgM and IgG plus either the PCR serum test or the PCR whole blood test, which test for DNA. Should I choose the whole blood or the serum, i don't understand the difference. I hope someone could explain this to me!


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