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Lyme Disease Message Board


Lyme Disease Board Index


Hi Jennifer and welcome.

Sorry to hear that you are ill but glad you found this site.

The list of symptoms of Lyme disease is long and may affect all systems of the body.

My initial symptoms were: severe fatigue, loss of balance, "drunk" feeling, hair loss, unexplained weight gain, knee pain, memory problems and trouble concentrating.

I had a rash on my right shin. It was red, oval and very very itchy. It drove me nuts scratching at it all the time! It didn't respond to creams or lotions. It was not a bull-eye rash.

Its a good idea to take a photograph of your rash.

I was sick for about a year before I found out what was wrong with me. It was really frustrating to go from doctor to doctor and have all sorts of tests - and not have any answers.

I finally found out what was wrong with me by having my blood tested at Igenex labs in Palo Alto California. The test was called Western Blot.

I had other Lyme tests prior to that, but I didn't know that local labs (MDL, LabCorp) use cheaper test materials and their tests are highly unreliable.

You can go to the Igenex web site and order the test kit yourself, but a doctor has to draw the blood and send it to them.

I never knew this, but deer ticks (aka black legged ticks) can live on birds, squirrells, rabbits, pigeons, moles, mice, cats and dogs.

I have no deer where I live and I don't ever remember a tick bite - but here I am with Lyme disease. Go figure! :)

You may want to get tested at Igenex if only to rule out Lyme. The test isn't cheap - but I was so sick and desperate for relief, that I didn't care about the money.

I hope you feel better soon. Living with illness can be really tough.

Peace and health to you.
Dear Jennifer,

Welcome to this site! So sorry you are not feeling well, I also had a rash that was not the "typical" or classic bull's eye rash.

Your symptoms do sound like Lyme to me. It is important to see a "reputable" Lyme Literate Medical Doctor (LLMD) as soon as possible so you can be diagnosed.

You should also have your blood sent to IgeneX Labs in Palo Alto, CA (we are not allowed to post websites here) for testing not only for Lyme but for coinfections as well as most ticks transmit more than 1 strain causing coinfections.

The good news is that Lyme is treatable especially when caught in the very beginning so time is very important as the longer one waits, the more difficult Lyme becomes to treat.

So please don't ignore this okay?

Also, it is a good idea to photograph your rash. Place something near it, like a coin or ruler, before photographing to give it size definition, and as it changes, take more photographs so you have this for the future.

Below is a symptom list courtesy of Ticker (our expert).

[FONT=Century Gothic]SYMPTOM CHECK LIST

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol


Ticks can also transmit several serious co-infections:

--Babesiosis is similar to malaria. It is caused by a protozoa that invades, infects and kills the red blood cells. Symptoms include chills, sweats, fatigue, headache, weakness, muscle aches and pains, dizziness and heart palpitations.

--Ehrlichiosis is an infection caused by a rickettsiae (a bacterial parasite) that invades and infects the white blood cells. There are two types of Ehrlichiosis--HME and HGE. Symptoms include fever, malaise, headaches, chills, sweating, severe muscle aches and pains, nonproductive cough, abdominal pain, nausea, vomiting, and diarrhea.

--Bartonella is also known as cat scratch fever and has recently been attributed to tick transmission [/FONT]

The majority of people don't even feel a tick bite because ticks contain a numbing agent, less than 50% of people even get any type of rash. My rash was itchy and turned different colors and was also raised.

If you tell us where you live, we can give you some names of "reputable" LLMD's for you to make an appointment with as it's better to be safe than sorry but having this checked out.

If you have any questions, please ask away!

Feel better,
Denise





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