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Lyme Disease Message Board


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Tamks
I have never had the gall bladder problems since I had mine removed many years ago. So sorry you have had the sludge problems. Glad you have some relief and so very good to hear from you again.

Tronni
Glad you went for a doppler and it was good. Better safe than sorry. I hope my blood problems are clearing up with me on the thinners. But right now my feet and ankles look like balloons. I had been on fluid pills to help with the fluid that was probably part of my headaches. I had stopped them a couple days ago to see if my chest pain would go away. Well, I guess the fluid pills helped more than just my head. I went back on them this evening.

Mickie and Kim (and everyone) hope youre have a good Memorial Day weekend.

Prayers....Marsha
Dear All

As a few of you know I started a new PICC line thread several weeks ago because I could not figure out why all of a sudden one of the most active threads went dead...so to speak...I am on my 2nd or 3rd PICC after 2 midlines and many peripherals in between...

I don't have much to say I do not do well on orals at all...and all I take now with the Rocephin IV is Flagyl for obvious reasons...

I have no money, no home, no friends in this city, no family here at all nor have I seen anyone from my family since Dec 2004 (they are mostly in FL now though we are all NYers.) I was dessimated by Katrina in many ways, and as so many of you know I was stuck alone in Lafayette...about 3 hours from NOLA for almost 7 months and did not see my 10 year old son who was whisked off to FL by his dad...and started school before we had a chance to discuss who he would stay with until they moved back...It was more agony than the Lyme...I just wanted to say that as hard as it is to believe, I have NO ONE AT ALL...except the knowledge that my son is in this city I managed to crawl back to...I hardly see him since I cannot drive...I cannot shop for myself most of the time I cannot do a thing but watch old movies with the sound very very low.

The IV was the only thing in all the treatments I have had that was beginning to seem as though it was producing real improvement at around month 5. Then, insurance woes for 2 months and out came the PICC and I was on orals and went downhill so fast it scared me...The new PICC has had one problem after another...I was spoiled with no problems in 7 months with lines before. Mostly it is my arm...and the butchery that radiology had to do to get a line in my veinless, scarred arm. I have lost feeling, or have intense pain in my muscles...not Lyme pain...and the site is frequently red, but the nurse comes out and we seem to catch infections in the bud...

I don't know everyone...life is not going well...and that is relative to how badly it has been going for so long that has become the norm...I would gladly go back to 9 months ago...well...everyone would go back preKatrina...but with Lyme and the rest...and losing everything and everyone and having no money and no one to go to when the last dollar is gone...well...the stress is just getting to me...getting through the near total isolation of everyday...TOTAL...I mean I might see the visiting nurse to change a dressing...I had friends, colleagues, family (thought far, I could travel) and usually significant others...I cannot find anyone to get me a quart of milk...and in this town you do not have a neighborhood store that is anywhere nearby...not here where I am...so if I cannot get myself in a vehicle I don't get anything I need or go anywhere Ihave to like doctors etc.

I digressed gruesomely...I am having a horrible time tonight after days of personal sadnesses and even more isolation, if possible, than usual...and a former good friend or so I thought...one of the last I could call one..totally cut me off in a very dramatic and heartbreaking way without any reason...it was a few months ago...but took this long to really realize that I no longer have this friend of years...

I haven't seen my son in over a week...for more than a few minutes one day...why am I here? But, where would I go? I have 5 months more of the IV...most likely...till that is finished in LA where I pay COBRA coverage that is limited to this state alone...I can't move anywhere...the money runs out in a few months...I just don't know...I am so sure that my beliefs are strong enough and I KNOW that God will provide...that another angel will come from some unknown place and sit squarely on my shoulder again...but it does get awfully hard day after day to believe that it will all happen in time to save me from the streets...

HOW DID THIS HAPPEN...I RAN A MARATHON 20 MONTHS AGO, and all the rest you all know about...I think I have as much acceptance as my Lyme brain will allow...and yet...we all still hope....

Memorial Day is one for us of a different kind, as well, one to remember all the strong, brave and tenacious Lyme folks who battle daily and less than recognized most are fighting a foe that a handful of people believe actually exists to be fought as we do...We should all sit and say prayers for all those who are so courageous in this LYME WAR...and that is everyone I have met on this board...

pax...et the rest
roni





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