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Lyme Disease Message Board


Lyme Disease Board Index


Hi Red Palms, welcome to the board!

I am sorry you have been so sick. How did you remove the tick you found? Did you save it? Although a bulls-eye rash is a definite sign of Lyme disease, only about 50% of people who have Lyme ever get a rash. Your symptoms can be attributed to Lyme. Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

100 mg of Doxy daily is not strong enough for Lyme and ten days of treatment is not long enough. Are you aware of the Jarisch-Herxheimer Reaction (herx)? Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks. This may have been why you felt worse on the Doxy.

It is very important to see knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No Lyme test is completely reliable and results can vary by lab. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. I think it is a good idea for you to get tested here.

To me it sounds like you may also have Babesiosis. Do you ever get night sweats, heart palpitations, or shortness of breath?

Your infection is still relatively early. The sooner you get the proper treatment, the better. I do not know of any Lyme doctors in MN. The closest one to you that I know of is in MO. If you would like his name, let me know.

Hang in there okay? Good help is available and you are not alone.





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