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Lyme Disease Message Board

Lyme Disease Board Index

Hi kwojo, welcome to the board!

Do you have copies of the Western Blot? Lyme tests can vary by lab and it is really best to be tested at a Lyme lab such as IgeneX in Palo Alto, CA. They have more sensitive testing. Many people who have Lyme do not test positive on the Western Blot by CDC standards. Lyme doctors often focus on which bands show, some are specific for Lyme. Band 41 for example is often the first to show in a Lyme infection.

Many people can keep a Lyme infection at bay until their immune system becomes stressed (illness, accident, divorce etc.), then symptoms emerge. It is always better to treat sooner than later because Lyme is a multi-system bacterial infection.

It is important to see a knowlegeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these also. Dr. Charles Ray Jones is the best Lyme pediatrician. I agree with sleeperwoken that it would be a good idea to call his office. Lyme needs aggressive treatment, often stronger than other infections.

What kind of reaction did your son have to the Amoxicillin? Ceftin can be used to treat Lyme.

How long do you think he has been infected? Thirty days of treatment is not long enough for Lyme. From what I understand, an infection caught within two weeks of the bite should be treated with a minimum of six weeks of the proper dose antibiotic. The antibiotics kill the bacteria when they are reproducing, which is estimated at four weeks. Six weeks of treatment will cover one growth cycle. If symptoms are still present, further treatment is warranted. A longer infection needs longer treatment.

Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

It is a good idea to document your son's symptoms daily. One way to do this is to list the three main symptoms he has each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when his herxes occur and how he is responding to the meds.

I hope your son's treatment goes well. Keep us posted okay?

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