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Lyme Disease Message Board

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Hi Sandra, welcome to the board!

How was the tick removed? Did you save it by chance? If so, it can be tested for disease at IgeneX lab in Palo Alto, CA.

I am sorry your daughter is sick, I know it is heartbreaking. Since her symptoms started shortly after the tick bite, I would be suspcisious also. Although a bullseye rash is a definite sign of Lyme, only about 50% of people who have Lyme ever get a rash.

Lyme disease is a multi-system bacterial infection caused from the bite of an infected tick. It can cause many different symptoms. It is the second fastest growing infectious disease in the US after AIDS and the number one vector-borne disease in the US. It is in every state.

A few tips about Doxy. Do not have any dairy, magnesium or iron products two hours before or after taking it or it will not be absorbed properly. If it makes your daughter nauseous, have him her something substantial and non-dairy before taking it. Have her drink a full glass of water when she takes it. Avoid the sun. She can get a severe burn in minutes even when wearing sunscreen. Tell hier not to lay down for at least an hour after taking it or she can ulcerate her esophagus. This is very painful!

Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

During treatment, it is a good idea to document her symptoms daily. One way to do this is to list the three main symptoms she has each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when her herxes occur and how she is responding to the meds.

It is important to learn as much as you can. I recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner, and reading Dr. Joseph Burrascano's Treatment Guidelines. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He also discusses antibiotic choices and doses for children. Please do find out about giving Doxy to children.

It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Often, infectious disease doctors are not the best to see for Lyme disease. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

Where are you located? Dr. Charles Ray Jones in New Haven, CT is the best Lyme pediatrician in the country. I suggest calling his office regarding the meds. Maybe your daughter's pediatrician could consult with him about treatment.

If your daughter has Lyme, it is good that her infection is early. This is the best time to eradicate it. Getting the proper treatment now may reduce the chance of long-term complications. Under-treated or untreated Lyme or tick-borne illnesses can be serious.

Hang in there okay? Good help is available and you are not alone.
Hi Sandra. Ten days of treatment is never long enough for Lyme disease. From what I understand, an infection caught within two weeks of the bite should be treated with a minimum of six weeks of the [I]proper dose [/I]antibiotic. The antibiotics kill the bacteria when they are reproducing, which is estimated at four weeks. Six weeks of treatment will cover one growth cycle. If symptoms are still present, further treatment is warranted. A longer infection needs longer treatment. Please take this seriously. Early infections are the easiest to treat.

Regarding getting the tick tested, it may still be possible. Call IgeneX lab in Palo Alto, CA to see. That is where I would recommend sending it.

There are not many Lyme doctors in the country, even fewer Lyme pediatricians. Dr. Charles Ray Jones in New Haven, CT is the best. I highly recommend calling his office regarding your daughter's dose and to see if he could consult with her doctor.

Definitely do not let her in the sun when on Doxy. Some people who take Doxy even get their knuckles burned from the sun coming into the car when they are driving! If you call Dr. Jones, I suggest asking if another antibiotic would work as well so this would not be a concern.

Good luck. Remember to be on the look-out for the herx reaction.

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