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Lyme Disease Message Board

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Hi Steve, welcome to the board!

I agree that it sounds like you were not treated long enough or aggressively enough initially. Did you know that Mycoplasma is one of the tick-borne co-infections? Do you have copies of your Western Blot test? If you want to post the results, we can help you interpret them. The CDC requires a large number of bands to show for it be considered positive, yet many people who have Lyme do not have that many bands. Lyme doctors often look at which bands show--some are specific for Lyme.

Babesiosis can cause many of the symptoms you describe: heart palpitations, night sweats, dizziness, headache, and fever. You may also still have the Ehrlichiosis. I would not recommend seeing Dr. D. It is my understanding that he does not treat co-infections. Also, he seems to treat everyone with either Biaxin with Plaquinel or Tetracycline. While these protocols may work for some people, they may not work for everyone and there are many other ones available. Babesiosis is similar to malaria and needs to be treated with an anti-malarial in conjunction with an antibiotic. This is often Mepron with Zithromax (or Biaxin or Ketek).

I know of three Lyme doctors who come highly recommended in NY: in Armonk, Hyde Park and East Hampton. Would you like one of their names?

It is important to learn as much as possible. I recommend reading "Everything You Need To Know About Lyme
Disease (2nd edition)" by Karen Vanderhoof-Forschner and Dr. Burrascano's treatment guidelines. He is one of the top Lyme doctors in the country, and many doctors follow his protocols.

Hang in there okay? Good help is available.

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