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Lyme Disease Message Board


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Hi,

OK. Here's my story:

In June 2005, I was one of the "lucky" ones to be diagnosed quickly as I had the classic bulls-eye rash. (Blood tests were negative). After much negotiation, I was able to get 4 weeks total of doxy. at only 200 mg./day. I didn't think it was enough, but it was all I could get. About 2 or 3 weeks before the rash, I had intense pain in my hip joints, different than anything I'd had before (I've had some joint pain for years since my early 20s), which at the time I didn't think much of. But, the hip pain went away while I was on the doxy. About the same time as the rash, I had fever, sore throat, stiff neck, tingling, numbness, etc. that did seem to get better on the doxy.

Fast forward to August 2006. I had an appointment with the rheumatologist as my hip had been hurting for weeks and I figured it was time to figure out what it was. She said it was bursitis. She was doing a bunch of routine bloodwork anyway, so I asked about doing the lyme tests since my primary care doc. who originally diagnosed the lyme had said that it would be "interesting" to see what my titers were now. She also sent me to physical therapy for the bursitis, where they did ultrasound therapy. A day or 2 after the ultrasound therapy, I started having pelvic pain (which I haven't had in years as I've been through early menopause) (I'm 42).

Well, the tests came back (from Quest) showing IgG negative and IgM positive (didn't list which bands). So, the rheumatologist called in a prescription for doxy, but I haven't been able to reach either her or my primary care doc. on the phone yet to discuss what exactly they think this means.

But, I'd rather get your opinions here anyway. Do you think this is a "reactivation"? And if so, is there any harm in going ahead and starting on what is probably a low dose of doxy? The rheum. left a message on the phone saying "it's possible to get lyme again," as if this is a new infection. I'm sure that's not the case as I do not remember any tick bites. (Although I have had mosquito bites). What other options for treatment would a LLMD possible recommend? (Not that that is an option for me -- I'm with an HMO).

Thanks for reading. My 3yo needs some attention, so I have to end this right now. I hope it makes some sense!





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