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Lyme Disease Message Board


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Hi Steve,

Thanks for your post. I will try to answer your questions:

>Who told you that a CD57 of 11 was good? It is better than 0, but it is not good. Normal is between 60 - 360.

My LLMD dr. told me 11 was very good. I am looking at the test results and see that 11 is "In Range" however there is no "Reference Range." :confused: I also had a Lymphocyte subset panel 1 which shows T Cells, Helper cells, Suppressor T Cells, NKC, B Cells & Lyphocytes to be in range. There are "Reference Ranges" for each of these.


>>The CD57 test is quite specific for Lyme disease, meaning that if it is below range and you are having symptoms that reflect Lyme then there is a great chance that you have Chronic Lyme disease. If you do a search for CD57 and then look at the first article you find then that should give you some good scientific based info.<<

I will do the search and see what I come up with. I had no idea that the CD57 was specific for Lyme. Thanks for the explanation of the test. :) I think this LLMD knows the right tests to order, but I am confused about the non-treatment. :confused: He just says with my allergies to pain meds, he thinks I will develop allergies to antibiotics, will have to stop and then I will be worse off than before I started treatment. The last thing I want is to be worse off. :dizzy:

>>IgM usually means current or recent infection. IgG usually means past infection. However for Lyme disease it is not so clear cut. You say you also have Mycoplasma P<<

So, is it possible IGG could be current? If IGG is past infection, does it mean my body has dealt with it already and it is not infecting me now? Yes, it is true I am positive for M. Pneumoniae AB, IGG my result: 3.20 (1.10 or greater is positive). (M.Pneumoniae AB IGM was negative.)

>>Both of these should be treated with Antibiotics. You say that you have an LLMD and he hasnt given you any antibiotics after 1.5 years of symptoms. Doesnt seem right to me. i think you need a new LLMD. Lyme disease is a clinical diagnosis anyway, even though you have results to prove it.<<

This doesn't seem right to me either. That's why I wondered if I truly have Lyme. :confused: Although, I must say the LLMD was starting to speak about a treatment plan until I told him about my drug allergies & sensitivies to pain medicine. Then he stopped & switched course. I wonder if the Lyme caused my drug allergies. (they have gotten bad in the last two years. Before that, I didn't have problems taking pain meds.) Do you know if it could?

>>EBV and CMV can lead to complications especially in immuno suppressed patients. However if you tested many people without symptoms there would be many that tested positive. I doubt they are as significant as your Lyme and Mycoplasma infections.<<

So, I should concentrate on the Lyme and the Mycoplasma. Can EBV be re-activated?? I wonder if that is why I am so fatigued (inaddition to the Lyme)

>>Good luck, but if I was you I would definetley be looking for a 2nd opinion!<<
Isn't it ironic that here I have a Positive test for Lyme & Mycoplasma and I am not getting treated. :dizzy: Many here struggle to get tested, some never do and yet they do get treatment. I do not really know of any other LLMD's. I am going to call an alternative medicine clinic which I just heard of. They do not use antibiotics. All of this is SO hard to do when you're so sick:dizzy: . It must be done, though.

Do you think Lyme and Mycoplasma can be beat without antibioitics? Will Salt/C or Dr. J's tinctures do it? Antibiotics (for my heart and sinus infections have messed up my stomach/digestive symptoms horribly).

Thanks Steve. I'm sorry this got so long. Looks more like a book!
Kayda





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