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Hi Steve,

Thanks for your post. I will try to answer your questions:

>Who told you that a CD57 of 11 was good? It is better than 0, but it is not good. Normal is between 60 - 360.

My LLMD dr. told me 11 was very good. I am looking at the test results and see that 11 is "In Range" however there is no "Reference Range." :confused: I also had a Lymphocyte subset panel 1 which shows T Cells, Helper cells, Suppressor T Cells, NKC, B Cells & Lyphocytes to be in range. There are "Reference Ranges" for each of these.


>>The CD57 test is quite specific for Lyme disease, meaning that if it is below range and you are having symptoms that reflect Lyme then there is a great chance that you have Chronic Lyme disease. If you do a search for CD57 and then look at the first article you find then that should give you some good scientific based info.<<

I will do the search and see what I come up with. I had no idea that the CD57 was specific for Lyme. Thanks for the explanation of the test. :) I think this LLMD knows the right tests to order, but I am confused about the non-treatment. :confused: He just says with my allergies to pain meds, he thinks I will develop allergies to antibiotics, will have to stop and then I will be worse off than before I started treatment. The last thing I want is to be worse off. :dizzy:

>>IgM usually means current or recent infection. IgG usually means past infection. However for Lyme disease it is not so clear cut. You say you also have Mycoplasma P<<

So, is it possible IGG could be current? If IGG is past infection, does it mean my body has dealt with it already and it is not infecting me now? Yes, it is true I am positive for M. Pneumoniae AB, IGG my result: 3.20 (1.10 or greater is positive). (M.Pneumoniae AB IGM was negative.)

>>Both of these should be treated with Antibiotics. You say that you have an LLMD and he hasnt given you any antibiotics after 1.5 years of symptoms. Doesnt seem right to me. i think you need a new LLMD. Lyme disease is a clinical diagnosis anyway, even though you have results to prove it.<<

This doesn't seem right to me either. That's why I wondered if I truly have Lyme. :confused: Although, I must say the LLMD was starting to speak about a treatment plan until I told him about my drug allergies & sensitivies to pain medicine. Then he stopped & switched course. I wonder if the Lyme caused my drug allergies. (they have gotten bad in the last two years. Before that, I didn't have problems taking pain meds.) Do you know if it could?

>>EBV and CMV can lead to complications especially in immuno suppressed patients. However if you tested many people without symptoms there would be many that tested positive. I doubt they are as significant as your Lyme and Mycoplasma infections.<<

So, I should concentrate on the Lyme and the Mycoplasma. Can EBV be re-activated?? I wonder if that is why I am so fatigued (inaddition to the Lyme)

>>Good luck, but if I was you I would definetley be looking for a 2nd opinion!<<
Isn't it ironic that here I have a Positive test for Lyme & Mycoplasma and I am not getting treated. :dizzy: Many here struggle to get tested, some never do and yet they do get treatment. I do not really know of any other LLMD's. I am going to call an alternative medicine clinic which I just heard of. They do not use antibiotics. All of this is SO hard to do when you're so sick:dizzy: . It must be done, though.

Do you think Lyme and Mycoplasma can be beat without antibioitics? Will Salt/C or Dr. J's tinctures do it? Antibiotics (for my heart and sinus infections have messed up my stomach/digestive symptoms horribly).

Thanks Steve. I'm sorry this got so long. Looks more like a book!
Kayda
JoJo,

Thanks for your quick reply. I really do need support. Just knowing I can count on you (and others here) though helps lift a burden. I've stuggled being sick for SO long, it's almost become a way of life--what I mean is, I hardly can remember what it is like to be healthy!:blob_fire

Is it at all possible my body could have fought off the Mycoplasma or Lyme?? I guess I am still confused about the IGG being a past infection. Does past infection mean it is not active??? OR maybe it doesn't matter. I definitely have CNS symptoms. Last summer, I was hospitalized (major medical center) for two days because drs. thought I had a stroke. Event occured while I was reading a book to dd. Suddenly the words on the page didn't make sense. I had difficulty comprehending when dd spoke to me, I had difficulty speaking. Something very weird happend with my vision. It was like the same scene raced in front of me eyes over and over. I got a headache. Drs. ran every test for stroke imaginable. Nothing confirmed it, yet they couldn't rule it out either. At the time, I asked them to do the Western Blot for Lyme. THey said yes, then changed and ran and ELISA (w/o telling me:mad: ). Elisa was negative. They never told me they didn't do the WB, just said my test was negative and left it at that:mad: . A month later, I foundDr. M who ran the WB. I was SO grateful he ran the right test and thought I was in good hands. :) But, alas, I haven't been treated either. I fell through the cracks with him once before:eek: when he didn't tell me I was positive for Lyme for 5 months. I called twice asking the results. His nurse assured me if anything was wrong, he would call me. So, since he didn't call, I assumed all was O.K. I found out later when I requested my records. Imagine how horrifying that was as I read the results and saw "positive" circled.:eek: When I asked him about it, he said this has never happened to anyone else, so I gave him another chance. Something does seem to be wrong here. I don't mean to "air all this dirty laundry" but the history is important, too. Maybe I will delete this later after you've read it.

Thanks again for your supportive words. I should make those two phone calls now. I'll let you know what happens. One other thing concerns me. Many seem to be treated with antibiotics and just don't get better.....I guess I do not know if that will be true in my case, hopefully, not.

Kayda:wave:
Hi Kayda

Good Luck - i know its not easy.

I was sick for 4 months before I figured I may have Lyme or something similar - mycoplasma, Chlamydia P etc.

I decided to get some doxycycline anyway so I could and try. One doc prescribed me a month at 200mg b.i.d. Within a week the headaches were gone. After 2 weeks when I saw an LLMD I doubled the dose. A few days later and my strange eczema looking rash dissapeared. 4 weeks later and I had a couple of semi-normal days.

The doc then changed me to Amoxi and Biaxin at relatively good doses. Unfortunately I feel I have been sliding since. Is it a Herx, is it the meds not working.....well no one can say for sure.

However, I have tasted some success with antibiotics and I know they did something positive. If things dont improve I assume I will need to maybe go back to the cycline family of abx. I get the feeling I will have to change after the next time I speak with my LLMD. Sometimes you need to trial and error to find whats right for you.

I think its kind of normal that we dont hear enough positive stories. But thats life, how often on the news at night do you hear about the lovely stories that happened during the day. Or even more simply, how often does someone send a company a letter thanking them for the positive effect their product has had on their lives...compared to when it has a negative effect.

People usuaully speak louder when they complain than when the praise!

Although I hope that when I am better to also leave some legacy for other new sufferers I also suspect that I wont be telling to many people about my positive story....why.....because I will be getting on with life.

Please try some treatment. That said, make sure you disclose all your conditions with the person who may offer you that treatment!

Steve





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