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Hi,

Yes, this happened not only to myself but to other people I know. There area also people who have had culture proven (PCR) Lyme infections who tested negative on the Western Blot.

Please re-read one of my earlier replies outlining some of the reasons for a Western Blot to give a false negative. Sometimes there are too few free antibodies in the blood stream to give a reading - they are all tied up with antigens (called a complexed antibody) which does not show up on the test. Sometimes for this reason a person can test positive after a course of antibiotics because the body isn't struggling so hard to fight the infection and there is a measureable amount of antibodies in the blood.
[COLOR="Purple"][B][I]Hi Eva...I know it is hard not to be dissapointed...BUT...I had a positive like back in 1988 somewhere around there...then they retested and got a negative...I knew nothing about lyme at the time...so went with it...THEN in 1992 got bit again and those threw me down big time...still for over 10 years NO positive...so in 2000 finally found a doctor that went on my symptoms...I was just about gone...in around 2005 after one of my picc lines was pulled I showed a slight positive off of a silly hospital lab...I knew I had lyme...

Also my sweeties 2 neices they both had lyme for years until diagnoised...one would have a positive on a western blot the other didn't..through another Lab the one that showed the positive showed a negative and the one that showed the negative on the western showed a positive...crazy!

Just can't go by test...

good luck![/I][/B][/COLOR]
[COLOR="Purple"][B][I]Eva I am curious...if you had a doctor before test you for lyme and it came out positive...Why aren't you getting treatment? Guess I am confused about that....

Jodie[/I][/B][/COLOR]
Hi Eva. Which lab did the Western Blot? Do you have copies? If not, I suggest you get copies.

You have symptoms and a positive test. You need to be treated.

No Lyme test is completely reliable, and results can vary by lab. It is important to be tested by a Lyme lab such as IgeneX. On the Western Blot, although the CDC requires a large number of bands to show for it to be considered positive, many people who have Lyme do not have this many bands show. Lyme doctors often focus on which bands show, some are specific for Lyme.

It is very important to see a Lyme knowledgeable doctor.
[QUOTE=jojo][COLOR="Purple"][B][I]Eva I am curious...if you had a doctor before test you for lyme and it came out positive...Why aren't you getting treatment? Guess I am confused about that....


Hi jojo-

I have a GP who tested me for Lyme and on the screener (ELISA) I was positive. He sent me to an ID doc who said he will only treat me for Lyme if Western Blot comes back positive. It came back negative today...:(

As far as my symptoms the ID suggested that they are "non-specific" and it can be lupus, or Chronic Fatigue, etc. I don't know- I read the websites about these diseases and they don't sound as close to what I'm experiencing as Lyme does. Especially my very prominent ear problems- only Lyme explains those.

Gosh....I'm so tired of being sick and not knowing what is wrong with me.

Eva.
[COLOR="Purple"][B][I]I know it is VERY frustrating...and confusing...but don't give up...sounds like lyme to me also...

Have you posted to ask if there is a LLMD around you? That would be you best bet instead of going from doctor to doctor....

sorry you having to go through this...
:angel: [/I][/B][/COLOR]





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