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Lyme Disease Message Board

Lyme Disease Board Index

Hi alwayshotroddin and welcome.

Sorry to hear you've been ill with no reason why. I went through that also. It was awful.

I went to many different kinds of doctors trying to find out why I was sick. It took a long time and a lot of money.

I can't say whether you have Lyme or not. Lyme hits more than one body system so the symptoms can baffle doctors.

My symptoms were mostly ear & balance related with a strange rash and mental troubles like short term memory loss, confusion, fatigue, couldn't conentrate, could not pick the right word when speaking, etc.

I went about a year without a diagnosis and continued to get worse while waiting to find some doctor somewhere who could figure out what was going wrong with me.

Some folks here searched for as long as nine years before finding out they had Lyme. How awful that people have to search so long!!

The folks here understand how frustrating and awful it is to be sick and not have any answers.

The one thing I can say is that it may be worth your time and money to rule out Lyme.

I was tested by ELISA and Western blot methods by local labs here in New Jersey and they came back negative.

At the time, I did not know that Lyme testing is very unreliable. Eventually I had my blood sent to a lab called Igenex in California. It wasn't cheap - but I was so desperate I didn't care about money. :)

My Igenex results were positive for Lyme, even meeting the CDC requirements for positive.

However, some folks with Lyme will never test positive, even at Igenex, but it may be worth your trouble to get tested there. You can go to thier web site and read about thier tests. An M.D. has to draw your blood and sign for the test.

One thing that helped me was to see a Lyme Literate Medical Doctor (LLMD). A good LLMD will be able to determine Lyme irrespective of test results.

If you post your state and town, someone here may be able to recommend an LLMD.

I know the suffering and despair of being sick with no answers. Hang in there, Ok?

Whether you have Lyme or not, you have to keep searching and fighting for yourself.

Peace and health to you,

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