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Lyme Disease Message Board

Lyme Disease Board Index

Hi Yourtroubl, welcome to the board!

Which test did you have done? How long have you been sick? If you have symptoms and a positive test, you need to be treated. No Lyme test is completely reliable and results can vary by lab. Many people who have Lyme do not test positive. The DNA test may be what is called a PCR test. Which lab will be doing it?

Lyme disease is a multi-system bacterial infection caused from the bite of an infected tick. It can cause many seemingly unrelated symptoms. Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. If you need a doctor recommendation, let us know.

Have you started treatment yet? Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.
Hi Yourtroubl. It is good to be in information mode. Knowledge is power. It is important to learn as much as you can.

There is a lot of misinformation about tick-borne illnesses with the majority of the medical community. A lot of people here can attest to this. I highly recommend that you see a Lyme doctor and get tested for all the infections listed. It is important to be tested by a Lyme lab such as IgeneX in Palo Alto. They use more sensitive testing and list more bands on the Western Blot test.

You have symptoms and a positive test, you need to be treated.

Tick-borne illnesses can be treated with oral and/or IV antibiotics. Which is used depends on many factors such as how long you have been sick, the type of symptoms you have, which co-infections are present, other problems you may have etc. Orals are often used first because they can be effective and they are less risky, less expensive and easier to administer.

Make sure you take high quality acidophilus capsules whenever you take antibiotics. They help to replace the good bacteria in the system and help prevent yeast overgrowth. The best ones to get are refrigerated. Most healthfood stores have them.

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