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Lyme Disease Message Board


Lyme Disease Board Index


Hi dkysh3, welcome to the board!

I am sorry your son has Lyme disease, but it is good he has been diagnosed. Although a bulls-eye rash is a definite sign of Lyme, only about 50% of people who have Lyme disease ever get a rash.

Lyme disease is a multi-system bacterial infection caused from the bite of an infected tick. It can cause many seemingly unrelated symptoms. Below is a Lyme symptom list. There can be any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

The best Lyme pediatrician in the country is Dr. Charles Ray Jones in New Haven, CT. I suggest calling his office.

What dose of Doxy is your son taking? A few tips about Doxy. Do not let your son have any dairy, magnesium or iron products two hours before or after taking it or it will not be absorbed properly. If it makes him nauseous, havehim eat something substantial and non-dairy before taking it. Avoid the sun. He can get a severe burn in minutes even when wearing sunscreen. Do not let him lay down for at least an hour after taking it or he can ulcerate his esophagus. This is very painful! Have him drink a full glass of water when he takes it for the same reason.

Whenever he takes any antibiotics, make sure he takes high-quality acidophilus capsules. They replace the good bacteria in the body and help to prevent yeast overgrowth (which males and females can both get). The best ones to get are refrigerated. Most healthfood stores have them. Wait at least two hours before or after taking the antibiotics to take the acidophilus. Ask your doctor about kind is best.

Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

It is a good idea to document your son's symptoms daily. One way to do this is to list the three main symptoms he has each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when his herxes occur and how he is responding to the meds.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.

Hang in there okay? It can be difficult going through treatment, but with proper treatment your son can get better. He is lucky to have such a caring parent.





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