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Lyme Disease Message Board


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Re: Question??
Mar 1, 2007
[QUOTE=ticker;2826098]Hi becott, welcome to the board!

How long were you sick before getting diagnosed? What antibiotics are you taking? I am not familiar with costochronditis, but Lyme can cause many different type of inflammation symptoms.

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these? If you need a doctor recommendation, let us know.

Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

It is a good idea to document your symptoms daily. One way to do this is to list the three main symptoms you have each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.

Hang in there okay?[/QUOTE]

Thanks for the support and information. Interesting a friend who has been on antibiodics for Lyme just came over this morning and warned me about the Herx reaction cycle. I felt better after she left since I'm not feeling so good right now and tend to be hard on myself. I've been almost completely bedridden for sevearl months mostly from the inflamation in my cartilege. The blood work from the Dr. showed the inflamation in my body is very high so he was concerned something was attacking my whole body. My Dr. sent in my blood work for an intensive cultural testing. He seemed to understand that Lyme doesn't show up on simple tests sometimes. I'm on two antibiodics...amoxicyline and doxocyline. I had fibro years ago and chronic fatigue and although the fibro has been gone for years the fatigue has lingered. I'm not sure when or how long this has been going on as this is the first informative Dr. I've had. Not sure about the other tests you asked about. I have an appt. in a couple of weeks so I'll ask him then. I wrote down the names of the books. Is there any alternative treatments instead of antibiodics that has been successful? Thanks again.
Re: Question??
Mar 1, 2007
[QUOTE=ticker;2826098]Hi becott, welcome to the board!

How long were you sick before getting diagnosed? What antibiotics are you taking? I am not familiar with costochronditis, but Lyme can cause many different type of inflammation symptoms.

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these? If you need a doctor recommendation, let us know.

Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

It is a good idea to document your symptoms daily. One way to do this is to list the three main symptoms you have each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.

Hang in there okay?[/QUOTE]

Thanks for the support and information. Interesting a friend who has been on antibiodics for Lyme just came over this morning and warned me about the Herx reaction cycle. I felt better after she left since I'm not feeling so good right now and tend to be hard on myself. I've been almost completely bedridden for sevearl months mostly from the inflamation in my cartilege. The blood work from the Dr. showed the inflamation in my body is very high so he was concerned something was attacking my whole body. My Dr. sent in my blood work for an intensive cultural testing. He seemed to understand that Lyme doesn't show up on simple tests sometimes. I'm on two antibiodics...amoxicyline and doxocyline. I had fibro years ago and chronic fatigue and although the fibro has been gone for years the fatigue has lingered. I'm not sure when or how long this has been going on as this is the first informative Dr. I've had. Not sure about the other tests you asked about. I have an appt. in a couple of weeks so I'll ask him then. I wrote down the names of the books. Is there any alternative treatments instead of antibiodics that have been successful? Thanks again.





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