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For several weeks now my muscle twitching has reduced and become very minor. The muscles in my arms and legs continue to hurt if squeezed but seem to me sort of OK. My doc increased my Doxy dose to 200 mg twice per day. Last week however I spend several days with a pins and needles feeling in my legs and before it was over one arm was also included. It started several days earlier with a pins and needles feeling after I would get out of the car or getting up from a chair. Then it was more and more common until last Tuesday it never went away even when laying in bed. One of my docs recommended a doubling in my potassium chlorite prescription and I started taking magnesium after a day or so and it has decreased, and now is only occasionally bothersome.

Has anyone else had this? Don't know if the things helped or if it was co-incidence.

The pain in the sides of my back are now intermittant and my gut feels better.

I hate this infection..
Yes, I had pins and needles while on doxy. I also had sensations like cold water was being thrown on my arms and hands. For me, it was a side effect of the doxy. It stopped when I switched meds.

Be careful of the sun when on doxy, you will burn easily even with sunscreen on. Also do not drink milk or take calcium or magnesium at the same time that you take doxy as the minerals may bind to it and make it less effective. Also, do not lie down within half an hour of taking doxy because it could burn your esophagus if you do. This is extremely painful when it happens.
[QUOTE=jeff001;2886401]For several weeks now my muscle twitching has reduced and become very minor. The muscles in my arms and legs continue to hurt if squeezed but seem to me sort of OK. My doc increased my Doxy dose to 200 mg twice per day. Last week however I spend several days with a pins and needles feeling in my legs and before it was over one arm was also included. It started several days earlier with a pins and needles feeling after I would get out of the car or getting up from a chair. Then it was more and more common until last Tuesday it never went away even when laying in bed. One of my docs recommended a doubling in my potassium chlorite prescription and I started taking magnesium after a day or so and it has decreased, and now is only occasionally bothersome.

Has anyone else had this? Don't know if the things helped or if it was co-incidence.

The pain in the sides of my back are now intermittant and my gut feels better.

I hate this infection..[/QUOTE]

Pins and Needles, Tingling Feelings, Burning Sensations...."crawly" feelings..etc... are all really common with Lyme.

It is called Parasthesias which is medically defined as : abnormal sensations such as numbness, prickling, or "pins and needles."

ALSO many people with Lyme have what is called Peripheral Neuropathy, which is defined as: damage to the peripheral nerves (usually involving the feet and hands) characterized by pain, tingling, numbness, and damage to the nerves in the peripheral nervous system which includes nerves that run from the brain and spinal cord to the rest of the body.

Treatment that is given is sometimes Neurontin or even an antidepression for Neuropathic pain....Neurontin can have some weird side effects though (I got severely dizzy and eye spasms on Neurontin).

These feelings are random...they come and go at any time...and can be isolated to one hand...or both legs...one finger..etc...its REALLY ANNOYING :mad:

I have been given Cymbalta, Neuronitn, Lyrica, Gabapentin, and Cesamet to try and relieve the Parasthesias...

Cesamet has had the best result...it is a med. for MS patients.

Feel better:)
I am wondering if anyone has or had a feeling like paralysis. I had both arms go completely numb on me twice (I could feel in them but could barely lift them), and also felt completely numb from the navel to the knees for about two weeks. At the time I was being treated by my GP, and he told me it was a combination of anxiety attacks and sciatica.

My neurologist gave me some kind of a nerve damage test on Tues. and I don't have any, apart from a very mild case of carpal tunnel which I had before all of this anyway. So I am assuming that these problems are from Lyme? They are not side effects from medication as I wasn't on any medication when it happened.

:),

Writeart
OK it has been a year since the onset of my symptoms. The three months of Doxy seemed to do the trick. The only thing is now I hurt in my joints such as ankles, knee, hip, arms and fingers. But the pain is not really bad and nothing comnpared to the pain I felt when I was sick, well. Anyway it would appear that the sore muscles and tingling and everything have been cured with the Doxy and probably six months after the end of the doxycyclene befor all symptoms went away. They went away very slowly. But they are gone!!! My first doctors did not really believe there was a problem but the neurologist in Jonesboro AR believed and fixed the problem.

Hang in there!
[QUOTE=Writeart;3020871]I am wondering if anyone has or had a feeling like paralysis. I had both arms go completely numb on me twice (I could feel in them but could barely lift them), and also felt completely numb from the navel to the knees for about two weeks. At the time I was being treated by my GP, and he told me it was a combination of anxiety attacks and sciatica.

My neurologist gave me some kind of a nerve damage test on Tues. and I don't have any, apart from a very mild case of carpal tunnel which I had before all of this anyway. So I am assuming that these problems are from Lyme? They are not side effects from medication as I wasn't on any medication when it happened.

:),

Writeart[/QUOTE]

I had an EMG/NCV test last year (just for lower body- my hands were tested several years ago) and supposedly my nerves are fine. (I went in then, because my big toe on my right foot is partially numb). I've already been told I have PN, though. And I have had a few instances where my arm (and entire side of body) went completely numb. I went to the ER because my neuro thought it might be a stroke.. One of the times it happened, it messed up my "cycle". I basically stopped just as I was starting, and it showed up a month later. This happened before abx treatment, but while I was transitioning from Topamax to Elavil. It happened again a month later when I was off both. I think the worst was when I woke up in Nov of 2000 and my left arm (the one I have most problems with) was in such pain, that I couldn't move it. It was practically useless for weeks.

I would assume in my case, it's probably Lyme, too. Unless there is something else going on that has yet to be discovered...:(





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