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Hi FlaGal1.

I remember my first few visits to my LLMD. They took vials and vials of blood and tested me for all sorts of stuf.

I was so sick and had such fatigue! Every visit I ask for photocopies of all my results from my previous visit.

It seemed overwhelming to me - so many numbers and +/ -. I tried to do research on the web to pick apart the numbers and try to make sense of it all.

It exhausted me to go for my monthly visits. I was absolutely drained after spending hours trying to reach conclusions from the results.

Following the advice of lymegirl, I bought a lime green 3 ring binder and tabbed separator pages.

I made sections for everything - blood tests, office visits, receipts, notes and my daily charts. Best thing I ever did to organize my growing scattered pile of papers related to Lyme.

With all my blood tests at my fingertips, I am able to compare one month to another.

Try to relax. Knowledge is power and the more you know about this disease the better off you'll be.

There is a sticky post at the top of the Lyme board that explains the western blot test results and what each band means.

Maybe you can print it out and compare it to your results.

But most important, relax. Sometimes I have to stop after each piddly little task and gather my breath and my thoughts. (quite the opposite of my old self).

A wise person, sleeperwoken, said that test results are just numbers on a piece of paper. YOU are still the same as before you had those tests. Actually, you are even bette than before since you have knowledge.

Hang in there, okay? We're here for you.

:angel:
Hi FlaGal1.

I remember my first few visits to my LLMD. They took vials and vials of blood and tested me for all sorts of stuf.

I was so sick and had such fatigue! Every visit I ask for photocopies of all my results from my previous visit.

It seemed overwhelming to me - so many numbers and +/ -. I tried to do research on the web to pick apart the numbers and try to make sense of it all.

It exhausted me to go for my monthly visits. I was absolutely drained after spending hours trying to reach conclusions from the results.

Following the advice of lymegirl, I bought a lime green 3 ring binder and tabbed separator pages.

I made sections for everything - blood tests, office visits, receipts, notes and my daily charts. Best thing I ever did to organize my growing scattered pile of papers related to Lyme.

With all my blood tests at my fingertips, I am able to compare one month to another.

Try to relax. Knowledge is power and the more you know about this disease the better off you'll be.

There is a sticky post at the top of the Lyme board that explains the western blot test results and what each band means.

Maybe you can print it out and compare it to your results.

But most important, relax. Sometimes I have to stop after each piddly little task and gather my breath and my thoughts. (quite the opposite of my old self).

A wise person, sleeperwoken, once comforted me when I was complaining about test results and she said that test results are just numbers on a piece of paper. YOU are still the same as before you had those tests. Actually, you are even bette than before since you have knowledge.

Hang in there, okay? We're here for you.

:angel:
Hi FlaGal. Why does the Lyme doctor want you to see an oncologist, because of your WBC?

Is he planning on treating the Babesiosis? Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective.

Regarding the Western Blot, the IgM tests for a more recent infection and the IgG a longer standing one. Below is the breakdown of the Western Blot bands:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

Although the CDC requires a large number of bands to be present for it to be positive, many people who have Lyme do not have this many bands. Lyme doctors often look at which bands are present--some are specific for Lyme.

Band 41 is often the first to show. Bands 23-25, 31, 39, and 83 are Lyme specific bands. Yours are either positive or IND, which is significant.

Hang in there okay?





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